Summit on AT Reuse and Emergency Management for FEMA Region VI May 1 and 2, 2012 Houston, TX Successful Strategies Innovative Partnerships Futures Planning

Welcome, Overview and Expectations Joy Kniskern, Principal Investigator, Pass It On Center (PIOC) Carolyn Phillips, Project Director, Pass It On Center Amy Goldman, Manager, PIOC Initiative on AT Reuse and Emergency Management and Director, Pennsylvania’s Initiative on Assistive Technology 2 1:00 – 1:30 p.m.

3 FEMA Region VI: Arkansas Louisiana New Mexico Oklahoma Texas Meet the Delegates: Introductions

Brief Introductions Your name and state Your role with/interest in emergency management, people with disabilities and functional needs, assistive technology (AT) and AT reuse Why you are pleased to participate in this Summit! 4 1:00 – 1:30 p.m.

Our Summit Goals To define role of AT reuse in disaster planning To identify needs for rapid response system for delivering AT devices after disaster To develop sustainable networks to meet AT needs in emergency management To begin at state level to develop plans 5

We’ll learn more about :  Assistive technology reutilization  Pass It On Center  AT reuse programs You can find a reuse program near you in the Locations Database at

Assistive Technology (AT) and AT Reuse Carolyn Phillips 1:30 – 2:15 p.m.

Pass It On Center -Promotes the safe, effective and appropriate reuse of lightly-used assistive technology -Provides technical assistance to organizations engaging in AT reutilization -Is funded by the U.S. Dept. of Education/ Rehabilitation Services Administration and administered through the Georgia Department of Labor’s Tools for Life Program

Reauthorization of the Assistive Technology Act New Freedom Initiative Interest from OSERS’ leadership Hurricane Katrina Born of ‘the perfect storm’

AT reuse serves America’s largest minority: People with functional needs One of every five Americans has some form of disAbility. It cuts across age, gender, race, ethnicity and religion. Any person may join this group at any time. Assistive technology makes it possible for us to live, learn and earn. AT reuse helps the uninsured, under- insured and those with coverage who experience delays in getting devices.  AT Reuse Customers/STAR, Alabama’s Assistive Technology Resource

AT reuse takes several forms: Exchange between seller or donor and buyer or recipient Refurbishment of devices for minor repairs to restore original function Reassignment to new users Device loans for trial or to fill the gap while waiting for a new device Recycling: breakdown for parts or end-of-life disposal Remanufacturing: Please don’t!

How we got here: First national conference on AT Reuse – May 2006 OSERS made grants to 12 three-year “demonstration” projects for AT reuse and to a technical assistance center (the Pass It On Center). There were only three identified reports on reuse projects, although we knew a lot more was being done.

We needed to: Increase access to and acquisition of assistive technology – Get AT to those who need it Ensure that clean, safe, appropriate AT was matched to the needs of customers Gain an understanding of what success is for AT Reuse Programs Develop Quality Indicators for AT Reuse Programs Develop methodologies for measuring outcomes of AT Reuse and Return on Investment (ROI) 13

Collaboration gets results Work groups, the National Task Force and individual programs contributed to the definition of promising practices. By sharing we created an online Knowledge Base that continues to grow. We developed Indicators of Quality for AT Reuse and created an Online Program Assessment Tool. We developed outcomes measurement and methodologies for measuring ROI. 14

Progress in three years 15 As of September 9, 2009, the number of states and programs listed (voluntary profiles) in the Reuse Locations Database had increased to 174. Of these: – 116 conduct reassignment activities – 87 conduct refurbishment activities – 44 conduct equipment exchange activities – 60 conduct reassignment and refurbishment – 18 conduct reassignment and exchange activities – 15 conduct refurbishment and exchange activities – 12 conduct reassignment, refurbishment and exchange

Reuse locations in 2011: 16 As of April 2012, the number of states and programs listed had increased to 211 (from 174 in 2009). Of these: – 127 conduct reassignment activities – 103 conduct refurbishment activities – 56 conduct equipment exchange activities – 63 conduct reassignment and refurbishment – 22 conduct reassignment and exchange activities – 17 conduct refurbishment and exchange activities – 13 conduct reassignment, refurbishment and exchange

17 State AT Act Programs Fiscal Year 2010 Reutilization Data

18 Types of AT Reuse Device Exchange – Want-Ad Digest/e-Bay for AT Device Reassignment/Refurbish – Devices accepted (usually by donation) into an inventory; are repaired, sanitized, and/or refurbished as needed; and then offered for sale, loan, rental, or give away to consumers as recycled products. – Includes devices repaired for an individual (without the ownership of the device changing hands) Open-Ended Loan – Borrower of a device can keep the device as long as needed

19 Type of Activities in State Programs Device Exchange Data – 36 State AT Programs Reported – Refurbish/Reassignment Data – 44 State AT Programs Reported Open-Ended Loan Data – 33 State AT Programs Reported Multiple Programs Reported by Most States 20 AT Programs reported all three – Exchange, Refurbish and Open-Ended Loan; 19 programs reported 2 of 3 Four reported Exchange only, 11 reported Refurbish/Reassign only, and two reported Open-Ended Loan only

AT reuse in all state programs 20 In 2010, all 56 states and territories reported reuse activities in their AT Act Programs: ActivityStates & Terr. Total # Devices Savings to Consumers Exchange361,331$ 2,836,996 Refurbish/repair4428,38913,355,432 Device loan336,1241,795,678 TOTAL5635,844 $ 17,978,046

21 Environment for Device Use Education 9.71% Employment 3.84% Community Living 86.45%

22 Customer Satisfaction Highly Satisfied 85.56% Satisfied 14.03% Satisfied Somewhat.33% Not at all Satisfied.08%

AT reuse and emergency response March first national summit on AT Reuse and Emergency Management, Washington, DC April FEMA Region IV Summit, Atlanta September 2011 – FEMA Region III Summit, Philadelphia Visit for summary materials and information from those eventswww.passitoncenter.org 23

Keynote: Disasters and People with Disabilities: What Have We Learned? Lex Frieden, University of Texas Director, Independent Living Research Utilization 2:00 – 2:30 p.m.

Disasters: Sharing Experiences Moderator – Roger Levy, Director, Texas Technology Access Program 2:30 – 3:30 p.m.

Panelists Frank Barnes, Oklahoma City Emergency Management Glenda Ford-Lee, OK Emergency Preparedness and Response Services Nikki Beneke, Region VI Disability Integration Work Group 2:30 – 3:30 p.m.

Refreshment Break 3:30– 3:45 p.m.

Assistive Technologies: What are we talking about? Rose Minette, Texas Department of Assistive and Rehabilitative Services Jamie Arasz Prioli, PIOC and PIAT With special thanks to Cathy Valdez, Executive Director, Project MEND 3:45 – 4:15 p.m.

Planning for the Whole Community Keynote Speaker – Marcie Roth Director, Office of Disability Integration and Coordination and Senior Advisor, Disability Issues, U.S. Dept. of Homeland Security/Federal Emergency Management Agency 4:15 – 5:15 p.m.

Wrap, Tomorrow’s Agenda, Food for Thought Carolyn Phillips See you for dinner at 6:30!5:00 – 5:15 p.m.

Wednesday, May 2, 2012 Continental Breakfast 8:00 – 8:30 a.m.

Preparation for More Effective Response Using Personal Experiences and “Lessons Learned” to Identify Needs, Opportunities, Issues and Potential Partnerships 8:30 – 9:15 a.m.

Preparation Who are the vulnerable populations? What are the likely disasters? What’s the state of public awareness? What’s being done about individual preparedness? What forms of communication will be used? Is your organization prepared to help? 33

Response Does your organization have a staffing plan for emergencies? A leadership succession plan? What provisions have been made to operate AT – possibly in shelters? Do you have agreements in place for AT or services? Have the logistics been worked out to receive, distribute and track AT? 34

Recovery What will happen to excess AT or supplies donated for the emergency? How will AT that is no longer needed be recovered for use by people who do need it? Do you have policies in place about “ownership” of equipment (e.g. transitioning out of shelters into other housing)? 35

Mitigation What have you learned from recent emergencies? What worked? What didn’t work? What needs improvement? Do you have a formal after action review (AAR) process? Do you have a plan to use the lessons learned to be better prepared next time? 36

Preparation Facilitator: Jamie Karam Recorder: Martha Rust Reporter? Response Facilitator: Linda Jaco Recorder: Joy Kniskern Reporter? 8:00 – 9:00 a.m. Recovery Facilitator: Roger Levy Recorder: Carolyn Phillips Reporter? Mitigation Facilitator: Amy Goldman Recorder: Reporter? LOOK FOR THE LOCATION POINTED OUT BY THE MODERATOR

Opportunities and Issues in EM and AT Reuse Reports from the Breakout Sessions 9:15 – 10:00 a.m.

Refreshment Break 10:00 – 10:15 a.m.

Intrastate, Interstate and Regional Support Agreements Jamie Landry Karam Jamie Arasz Prioli Linda Landers 10:15 – 11:15 a.m.

11: :45 a.m. Framework for Planning Amy Goldman

Lunch Please be our guest for lunch. 11:45 a.m. – 12:45 p.m.

* Join with the state of your choice State Planning 12:45 – 2:00 p.m. State Louisiana Oklahoma Texas *Arkansas *New Mexico Join your delegation in the designated area.

Refreshment Break 2:00 – 2:15 p.m.

State Planning, continued 2:15 – 3:00 p.m.

Debriefing: State Planning Carolyn Phillips 3:00 – 3:30 p.m.

Now this is not the end. It is not even the beginning of the end. But it is, perhaps, the end of the beginning. -Winston Churchill (with thanks to Craig Fugate)

Wrap Up: Next Steps and Meeting Evaluation Joy Kniskern 3:30 – 4:00 p.m.

49 SHARE YOUR EXPERIENCE TO BENEFIT OTHERS Knowledge Base Donate your plan for an example. EM Blog Write about the planning process Share emergency experiences Discuss issues Share your resources and your experiences to assist your colleagues. Use the PIOC website.

Evaluate the Summit, Please Please complete the brief evaluation form in your package and leave on the back table. If you have additional comments or suggestions, please contact us:

Adjourn Thank you so much for attending and have a safe trip home.

Contact us: DISCLAIMER This work is supported under five-year cooperative agreement #H235V awarded by the U.S. Department of Education, Office of Special Education and Rehabilitative Services, and administered by AMAC/Georgia Institute on Technology. However, the contents of this publication do not necessarily represent the policy or opinions of the U.S. Department of Education, and the reader should not assume endorsement of this document by the Federal government or AMAC/Georgia Institute on Technology.