NATIONAL CANCER PATIENT EXPERIENCE SURVEY REQUEST FROM LEAD CANCER NURSES: TO PUT THE NATIONAL CANCER PATIENT EXPERIENCE SURVEY RESULTS AND ACTIONS ON THE SSG MEETING AGENDAS AS A PERMANENT RECURRING ITEM PURPOSE OF THE REQUEST: TO PROMOTE PATHWAY SERVICE IMPROVEMENTS IN THE WAY THAT THE CLINICAL NURSE SPECIALISTS WOULD LIKE TO SEE THEIR SERVICES MAINTAINED OR CHANGED

KEY POINTS FOR DISCUSSION Trust level best practice to be shared Trust / network level priorities identified for pathway improvements Actions required to address identified priorities Progression of the action plan

UHBRISTOL Over all disappointing results for UHBristol No ‘urological’ level specific results (only 15 respondents) UHBristol prostate results (26 respondents) Good practice 100% of patients felt carefully listened to by the CNS 100% told by staff that they could get free prescriptions 96% patient had seen information about cancer research in the hospital 95% GP given enough information about patients condition and treatment 89% staff did everything to control side effects of chemotherapy Areas for improvement 65% possible side effects explained in an understandable way 54% hospital and community staff always worked well together 33% given information about getting financial help 19% offered written assessment and care plan (HNA)

UHBRISTOL APPROACH TO ACTION PLAN Two stage approach to action planning, following these results Stage 1 – gain thorough understanding of what’s its like to be a ‘UHBristol cancer patient’ (national results reflect inter-organisational pathways)  Focus groups with Patient Association (UHBristol patients and shared patients)  In-house repeat of survey  Feedback from UHBristol staff – providing cancer care on general wards  Healthwatch Bristol undertaking city–wide exercise to better understand cancer patient experience  Cancer CNS pathway mapping across Network Trusts Stage 2 – service improvement  Participation in NHS Improving Quality national programme to buddy with a peer Trust that performs well in the NCPES.  Address local and cross-organisational issues for UHBristol and ‘shared patients’ as identified in Stage 1

WESTON GENERAL UROLOGY DEPT National results are difficult to interpret as they do not identify patient groups, tumour site, intention of treatment etc. Location of inpatient stays are not identified and may be Southmead or at WGH. Therefore in order to formulate a meaningful work plan for Urology for , a local survey of cancer patient’s was undertaken in Patients were diagnosed between Dec’ 13 and April ’14 and had not been sampled in the national survey. Type of cancer was identified and questions reflected the usual treatment pathway. Patients were satisfied with the service and felt their needs were addressed in a holistic fashion. Areas that need redesign were identified and agreed by the local MDT. Plan. Identify and modify patient information to reflect normal pathway. Devise a triage clinic for non macroscopic haematuria patients, Include protocol and business plan. Take into consideration the administrative needs for new clinic set up, where it sits in time table and the CNS role within this clinic

YEOVIL HOSPITAL AREAS FOR IMPROVEMENT TO IMPROVE CANCER RESEARCH INFORMATION ENSURE TAKING PART IN UROLOGICAL RESEARCH IS DISCUSSED WITH PATIENT TO IMPROVE METHODS OF PAIN CONTROL WHILE THEY ARE AN IN-PATIENT NAME/CONTACT OF CNS TO BE GIVEN TO PATIENT

YEOVIL HOSPITAL ACTIONS CURRENTLY IMPLEMENTED HOSPITAL LETTERS HAVE FOOTER ADDED TO INFORM PATIENTS THAT THE HOSPITAL IS A RESEARCH BASED HOSPITAL. CLINICAL TRIALS NURSE ATTENDS WEEKLY MDT MEETINGS NURSE-LED FOLLOW UP CLINICS IMPLEMENTED WITHIN ONCOLOGY. THIS HAS INCREASED CAPAPCITY FOR ONCOLOGIST TO SEE NEW TRIALS PATIENTS ACTIONS IN PROGRESS RESEARCH INFORMATION PAGE HAS BEEN ADDED TO THE PATIENT BLUE DIARIES WORKING PARTY FORMED TO LOOK AT PAIN CONTROL ISSUES WITHIN THE TRUST. CNS/KEY WORKER ROLES TO BE REFLECTED IN JOB PLANS.

RUH BATH  All generally good  Excellent staff – all grades, lots of praise for the NHS  Prostate – good pathway from initial OPA, biopsy, results, scans, joint clinic to treatment  Seeing same CNS each visit  Appointments on time

RUH BATH Not so good Parking Not seeing the same medical staff each time Appointment time frames different to what consultant stated Lack of liaison between medical teams and departments