DDSN Resources and Planning For Changes To Come

DDSN Eligibility

Autism Eligibility FY new persons FY 2008:3144 FY 2009:3265 FY 2010:4728 FY 2011:4869 FY 2012: % growth

DDSN Budget and Financial Projections FY 13 Base Expenditures and commitments after July 1, 2012 $514,137,000 $174,652,000 state appropriated funds $322,899,000 Medicaid Revenue - 63%

South Carolina DDSN Ranking of States’ Ability to Create Community – Inclusive Lives for Americans with Intellectual Disabilities/Related Disabilities (ID/RD)

Stakeholder Analysis South Carolina Department of Disabilities and Special Needs August 16, 2012 Prepared by

Methods Series of eight focus groups across the state Each included four groups of stakeholders: families with children birth to age 5 at home families with children age 6 to 20 at home adults living with families adults or children living in a DDSN residential facility Prepared by

Background 805 participants across the state Information from an online survey of 150 DDSN stakeholders was also analyzed as part of this study Prepared by

Topics covered Most and least important supports Parts of the support system that are working well and those that need improvement How DDSN can improve the value of the supports it provides Cost containment Health care concerns and barriers to appropriate health care Additional supports needed Prepared by

Key Findings (1a) Virtually every service DDSN provides is considered important by consumers. While the identification of the “most important” service varied across groups, respite care, quality staff, and service coordination are generally considered important by all groups. Prepared by

Key Findings (1b) Group specific “most important” services include: 0 – 5: early intervention therapies 6 – 20: personal care aides adults: respite care residential: quality of life and compatibility Prepared by

Key Findings (2) There are virtually no supports that are considered to be “least important.” Although several different services were mentioned as part of these groups, the sentiment clearly expressed was that “all services were important.” Prepared by

Key Findings (3) Stakeholders generally believe that the DDSN system works well, and the best features of the system identified vary by group: 0 – 5: early intervention; PDD waivers 6 – 20: waivers; family supports adults: consumer focus; consistent services residential: quality of care; facility features Prepared by

Resources for Persons with Autism Home and Community Based Waivers DDSN Operated: ID, CS, (all ages ) ICF/ID level of care PDD (Ages 3 to 11 yrs ) ICF/ID level of care or diagnosis of ASD DHHS Operated: Community Choices (18+ years), NF level of care CHANCES (< 21 yrs) PRTF level of care Caregiver Relief Programs Aiken, Babcock, Bamburg, Beaufort, Charles Lea Center, Darlington, Florence, Horry, Greenville, Kershaw (new), Laurens, Marion/Dillon, Williamsburg (new), York State-Funded Respite and Family Support

Resources for Persons with Autism (Cont.) Medicaid – Beyond Basic Medical Care Services Rehabilitative Behavioral Health Services (all ages) PCII, nursing, Therapies (birth to 18 years)

Toll Free PDD Screening Line

Current Issues Affecting Services/Resources and Quality for PDD Program Supply/Demand lines, leads and Behavior Analysts Crisis Stabilization Team (finished design) Respite In-Home ABA Outside Waiver

Future Issues Affecting Services/Resources and Quality for PDD Program Managed Care; Accountable Care Organizations Medical Insurance for all QA PDD Program DSM-V changes to ASD definition Shortage of direct care professionals Transition from high school to employment or post secondary education Growing Waiting Lists Technology Innovations