New Approaches for Addressing Long Term Survivorship in Transplant Patients Dennis L. Confer, M.D. Chief Medical Officer National Marrow Donor Program.

Slides:

Advertisements

Similar presentations

Organ Donation. A.No age limits – under 18 requires parent or guardian consent B.To donate, indicate on driver’s license and carry donor card C.Assure.

Advertisements

Hematopoietic Stem Cell Transplantation Lynn Savoie September 30, 2006.

Questions and Answers about Bone Marrow Stem Cell Transplantation prepared by the Armenian Bone Marrow Donor Registry.

Miguel Concepción Class of 2009 UMass Medical School Educational Presentation for Middle & High School Students.

Umbilical Cord Blood: An Alternate Source of Stem Cells Susan Parker Advisor: David Fahringer PA-C University of Kentucky College of Health Sciences Physician.

Running a Corporate Donor Drive : A Partner Guide For more information, or call us on

John C. Lincoln Health Network Carrie Cantrell, LMSW, MPH Program Coordinator.

Dentist office on the Internet We take care of your presence online WEBSITE DESIGN FACEBOOK PAGE NEWSLETTER LIST SIGNUP EASY ONLINE FORMS CUSTOM.

IEEE Computer Society Name Title, IEEE Computer Society The community for technology leaders.

LINDSAY COURT Nonprofit Community Health Center Web Strategies.

Current Uses and Outcomes of Hematopoietic Stem Cell Transplantation 2010 CIBMTR Summary Slides SUM10_1.ppt.

Current Uses and Outcomes of Hematopoietic Stem Cell Transplantation 2011 Summary Slides Worldwide SUM-WW11_1.ppt.

Kelsey Cramer. MEET MY AUNT DONATING BONE MARROW.

Testimony on Guidance Document for Licensing Cord Blood Banks Elizabeth J. Shpall, MD Vice-President International NetCord Foundation.

“It is my vision to help seniors obtain quality medical and personal care. As a certified elder law attorney, I have seen the enormous benefit that a.

Association of Textile, Apparel and Materials Professionals AATCC Students to Professionals AATCC Student Membership.

EMERGING FAITH FORMATION ROLES ARCHITECT & CURATOR VISION & PRACTICE OF 21 ST CENTURY FAITH FORMATION.

Quality Improvement and Care Management

Knowledge into Action for HAI Improvement Facilitators Suzanne Wilson Improvement Manager (Knowledge into Action) NHS Education for Scotland.

An Overview of the Bone Marrow Donation Process The Icla da Silva Foundation, Inc. Internet:

Dennis L. Confer, M.D. Chief Medical Officer, NMDP The National Marrow Donor Program Research Sample Repository: A Resource in Jeopardy.

CTxCPCRN Central Texas Cancer Prevention and Control Research Network Kick Off Grantee Meeting Atlanta, Georgia October 15-16, 2009.

STATE HEALTH PLAN REQUEST FOR REVIEW OF DONOR COVERAGE BENEFITS Presented by: S. Elizabeth Sharf August 2015.

Stem Cells. What are Stem Cells? Stem Cells: Cells that do not yet have a specific function or job in the organism.

Knowledge into Action: supporting education and learning Host: Derek Boyle Senior Knowledge Manager, NHS Education for Scotland

Continuing the work of the Bill & Melinda Gates Foundation Presented by: Jeff Stauffer WebJunction Service Manager Date: 3 February 2005.

OtherHalf – Chinese Stem Cell Initiative. Who is OtherHalf? Grassroots organization established in 2008 to raise awareness of the urgent need for more.

Assessing Patient-Centered Medical Homes from the Patient Perspective: Developing the CAHPS ® Clinician & Group PCMH Survey Patricia Gallagher, PhD Center.

Assessing Patient Satisfaction Ron D. Hays UCLA Division of General Internal Medicine and Health Services Research RAND Health Program AUA Foundation Summer.

CANCER IN THE WORKPLACE: HOW EMPLOYERS CAN HELP Lynn Zonakis Principal, The Zonakis Group LLC October 23, 2015.

Electronic Dissemination of Hematologic Cancer Survivorship Materials with Application to the Adolescent and Young Adult (AYA) Community OHSU Cancer.

Established in 2012, BTMOC is more than a student-led program on college and university campuses. It is a burgeoning social movement to expand the reach.

Creating Connections. Saving Lives. ™ NATIONAL MARROW DONOR PROGRAM ® Regulation of PBSC and DLI from Unrelated Donors: Meeting the Needs of the U.S. Public.

Person Directed Mobility Management: Tools and Resources Jed Johnson & Virginia Dize National Center on Senior Transportation.

User guide for the Faith and Light International website

Bone Marrow Donation. What is Bone marrow?  flexible spongy tissue in the interior of bones such as your hip and thigh.  constitutes 4% of the total.

2010 State Trauma Update Kansas Medical Society Paul B. Harrison, MD FACS Chair, Advisory Committee on Trauma.

Advances in HLA Matching for Unrelated Donor Transplantation Dennis L. Confer, M.D. Chief Medical Officer National Marrow Donor Program Minneapolis, Minnesota.

JENNIFER WATSON, MA NATIONAL INSTITUTE ON AGING, NIH MAY 19, 2016 Healthy Aging & Participation in Research What Older Adults Should Know.

HAPLOIDENTICAL STEM CELL TRANSPLANT

Hematopoietic Stem Cell Current Status and Future Directions

New Approaches for Transplant Patients Linda J Burns, MD Medical Director, Health Services Research Program National Marrow Donor Program (NMDP)/Be the.

Cord Blood Presentation to the AZ House Health Committee Charis Ober Save the Cord Foundation January 12, 2016.

Toxic Exposure Correlation to Military Service Presented by Sharon Dougherty RN,BC MSN.

Introduction to Neuro-QoL

The Donor Perspective Catherine Burlton Title slide (option number 2)

EBMT Registry Update Shelley Hewerdine

Hematopoietic Cell Transplantation: Moving Beyond Survival to the Patient’s Perspective Linda J Burns, MD Medical Director, NMDP/Be The Match Health.

Introduction to Neuro-QoL

Researching social media

Gupta V, Tallman MS, Weisdorf DJ

Mohamed A. Kharfan-Dabaja, Claudio Anasetti, Edgardo S. Santos

Alternative Allogeneic Donor Sources for Transplantation for Childhood Diseases: Unrelated Cord Blood and Haploidentical Family Donors Mitchell S. Cairo,

Introduction to Neuro-QoL

by Jayesh Mehta Blood Volume 112(2): July 15, 2008

Assessment of Allogeneic HCT in Older Patients with AML and MDS: A CIBMTR Analysis McClune B et al. ASCO/ASH Symposium 2009;The Best of ASH Special & Plenary.

ALLOGENEIC HEMATOPOIETIC CELL TRANSPLANTATION for MULTIPLE MYELOMA

FACT Accreditation.

National Marrow Donor Program HLA Matching Guidelines for Unrelated Adult Donor Hematopoietic Cell Transplants Robert A. Bray, Carolyn K. Hurley, Naynesh.

Timing for HCT Consultation

Twenty Years of Unrelated Donor Hematopoietic Cell Transplantation for Adult Recipients Facilitated by the National Marrow Donor Program Chatchada Karanes,

Intro to STAR Link Heidi McFadyen Introduction.

Toxicity Reporting in CAR-T

Expert Medical Opinion Program

Hematopoietic Cell Transplantation for Children with Acute Lymphoblastic Leukemia in Second Complete Remission: Similar Outcomes in Recipients of Unrelated.

Allogeneic Hematopoietic Stem Cell Transplantation in FLT3-ITD–Positive Acute Myelogenous Leukemia: The Role for FLT3 Tyrosine Kinase Inhibitors Post-

Timing for HCT Consultation

Expert Medical Opinion Program

Likelihood of finding unrelated donor or cord blood

Likelihood of finding unrelated donor or cord blood

Presentation transcript:

New Approaches for Addressing Long Term Survivorship in Transplant Patients Dennis L. Confer, M.D. Chief Medical Officer National Marrow Donor Program May 16, 2015 Leukemia Research Foundation Treatment Options for Blood Cancer Patient Conference 1

A Little History 1968First successful related donor transplants 1973First successful unrelated donor transplant 1974Anthony Nolan Register established 1979Laura Graves URD transplant for ALL 1986NBMDR -> NMDP established 1987Two transplants completed Today:World’s largest registry >12.8 million donors >214,000 CBUs >70,000 Transplants completed NMDP has received 29 years of uninterrupted Federal support 2

Our Network Partners 3 We are the hub of a global transplant network including partner centers throughout the U.S. as well as centers and registries in 41 countries.

Total Growth of the Be The Match Registry ® Adult Donors Cord Blood Units 4

What about the likelihood of finding a donor? Recently published study in the New England Journal of Medicine NMDP/Be The Match collaborators Reviewed match rates for 21 unique ethnicities in the U.S. Gragert L, et al. N Engl J Med. 2014; 371(4):

Pasquini MC, Wang Z. Current use and outcome of hematopoietic stem cell transplantation: CIBMTR Summary Slides, Available at:

Transplants by Cell Source 9

Transplants by Recipient Age

Free support and resources 11 Confidential one-on-one support and guidance –Experienced team of Patient Services Coordinators can answer your questions, share resources and provide support –Peer Connect Program matches you with a patient or caregiver who can share their transplant experience Free resources to help you before, during and after transplant –Print, video and online resources –Many available translated in Spanish and 10 other languages –Order or download online at bethematch.org/request

After Transplant Guidelines 12 Easy-to-understand post- transplant check-up guidelines Recommended tests and evaluations for your follow-up appointments Available online or as a mobile app -BeTheMatch.org/patient-survive -Search “transplant” in the iTunes or Android store, then download

Living Now: A Guide to Life After Transplant Living Now is a collection of observations, tips, and resources delivered in newsletter format Each issue addresses various aspects of life after transplant, from 3 months post transplant, to 2 years and beyond To order: –BeTheMatch.org/request – 13

Stay Connected Living Now e-newsletter and Facebook Living Now, a free e- newsletter designed for transplant patients and their families. To sign-up to receive Living Now –BeTheMatch.org/patient-enews Patients Connect Facebook 14

Connect with us Learn: BeTheMatch.org/patient Request Information: BeTheMatch.org/request Call: 1 (888)