Beating cancer and surviving the cure! Randy Henniger, 27 year colon cancer survivor Colostomate & urostomate Cancer survivor community advocate Beating cancer and surviving the cure! Copyright©by R. Henniger 2012

Diagnosed with Stage III rectal cancer at age 30 Randy’s story: Diagnosed with Stage III rectal cancer at age 30 Surgery with permanent colostomy 6 weeks of radiation treatment ED with penile implant at age 31 Bladder dysfunction at 40 Neuropathy at 50 Urostomy surgery at 58 Active life: Surfing, yoga, biking, hiking, swimming Great Comebacks Western Region award winner: 2011 Copyright©by R. Henniger 2012

You know you’re an ostomate when… • You have a favorite "Ensure" flavor. • People ask about your guts, before they ask about your family. • You have more photos of your insides that the outsides. • You have a spare pair of underwear in your bag/pocket. • You give directions via toilets rather than by restaurants. More humor at: http://www.inspire.com/groups/ostomy/discussion/ostomy- humor/?reply_sort=asc&page=1#replies / Copyright©by R. Henniger 2012

Image & Relationships I am the same person I was before surgery “We don’t love you for how you go to the bathroom” When to share? First date? No Before intimacy? Yes Wraps, straps and sashes can be sexy Prepare, pick the best time, try a smaller pouch Emotional recovery assistance as well as physical Copyright©by R. Henniger 2012

Diet & Nutrition Keep a “Food” journal Fewer “feet” is better Times, amounts, results including meds Fewer “feet” is better 0: Fish, 2: Chicken/turkey, 4 feet: beef/pork Half the plate: veggies, ¼ plate protein, ¼ carbs Fluids, fluids, fluids: 64 oz min.(check w/ doc) Illies require more hydration Diarrhea is our enemy, lomotil is our friend Copyright©by R. Henniger 2012

Physical activities Consult a physical therapist Take care when lifting Add “padding” when biking Swimming: use a belt, non-filtered pouch Protect your stoma: Stealthbelt Active Ostomates: “NO LIMITS” 30 minutes/day of aerobic exercise Copyright©by R. Henniger 2012

Ostomies Sigmoid colostomy Ileostomy Ascending colostomy Transcending colostomy Urostomy Stoma marking before surgery? Yes! Beltline: No! Protruding: Yes! More for illies Copyright©by R. Henniger 2012

Ostomy products One Piece Drainable 1 piece: closed, cut to fit Irrigation Kit* Two Piece Mouldable Convex Stoma Cap Closed End Urostomy Drainable Wafer Wafer Pouch one piece *Only colostomates with healthy colons are candidates to irrigate, check with WOCN Copyright©by R. Henniger 2012

Skin issues 5 day max. wear for ostomy appliance Check “all around” stoma (mirror) Gently press skin away from appliance don’t pull Redness, rash, irritation Pancake with 3 layers of stoma-powder/skin prep More than 3 days, see your WOCN 24 hour skin trial for anything new No creams, oils or soap residue Copyright©by R. Henniger 2012

Tips & tricks Illies Pouch liners (colomagik) Stool solidifier (SmellEze) Horizontal pouch position for sleeping Pouch liners (colomagik) Pouch deodorants (mouthwash) Skin Prep: Torbot Skin prep wipes Ostomy and hernia support belts:Nu Hope Emergency kits: car, office, gym, 2nd home Copyright©by R. Henniger 2012

New Ostomate Support Needs Diagnosis Emotional Education Decision Treatment Physical Nutrition Stay the course Post-op Ostomy care New me Good survivor Copyright©by R. Henniger 2012

Diagnosis Make a Decision Gathering Resources Preparing Emotionally Ostomy as an Option Gathering Resources Ostomy Buddies and Online Community Preparing Emotionally Ostomates are people too! Copyright©by R. Henniger 2012

Surgery & Recovery Pre-Op Physical Recovery: Physical Therapy, diet Wound, Ostomy & Continence Nurse (WOCN) consult for stoma marking/location Physical Recovery: Physical Therapy, diet Emotional Recovery: Mental Health Prof. Get the Right Products and Support WOCN Participation Manufacturers support programs available Support sites include CCA’s CRC connections, www.ostomy.inspire.com, www. ostomy.org Copyright©by R. Henniger 2012

Post-Op Acceptance A Good Survivor Paying it Forward The new you, “No Limits!” A Good Survivor Bitter to Better!, Victim to Victor! Paying it Forward Helping others helps us Regular follow ups with WOCN UOAA support group meetings: Calendar View UOAA Support Group Meetings_Western Region calendar Copyright©by R. Henniger 2012

Active Ostomates Copyright©by R. Henniger 2012

Pay it Forward Saturday, March 2, 2013 in Land Park: Sac 800 participants, $40,000 raised for FREE screening www.undy5000.org Copyright©by R. Henniger 2012

Resources Facebook page: ActiveOstomates UOAA, www.ostomy.org http://www.facebook.com/pages/ActiveOstomates/273287332764236 UOAA, www.ostomy.org Convatec CIC: 800.422.8811 OstomyWorld http://www.ostomyman.org/#!community-forum/c22z Copyright©by R. Henniger 2012

Contact Info www.ostomyman.org theostomyman@gmail.com 760.575.4113 Copyright©by R. Henniger 2012