Consumer Advocacy The strength of a Network: moving beyond talk to action Amanda Winiata Community Programs Manager Breast Cancer Network Australia

BCNA’s mission That every Australian diagnosed with breast cancer receives the best information, treatment, care and support, no matter who she is or where she lives Over 60,000 members across Australia

What helps to effectively work together Clear expectations Open communication Knowledge to represent BCNA Common understanding Feedback Share experiences

BCNA offers women two opportunities for advocacy roles Sharing personal experiences Community promotion activities Strengthening local networks Community Liaison Influencing decision making Involved in all types of committees Promoting value of consumer involvement Consumer Rep

4. Feedback & ongoing support 3. Training 2. Screening 1. Recruitment 5. Evaluation Community Liaisons Forums Website Networks Community events Experience of BC Community networks Public speaking Comm. skills BCNA resources Knowledge of BC Action plan Resources Briefings Networking Online Network Pre & post training Number activities Consumer Representative Website Community Liaison Networks Experience of BC Understanding of BC Raising issues Advocacy skills Health system Basic science & clinical m’gement Conferences Refresher training Teleconferences Mentoring Impact analysis Case studies

Community Liaison highlights

Influencing decision making leading to improved outcomes ‘Chemoprevention’ ‘Risk-reducing medication’

Key factors for a successful program Processes to determine suitability for the role Ongoing engagement with women Communication about expectations Sophisticated database of women Dedicated resources Opportunities to develop capability Engagement with requesting organisations Evaluation and continuous improvement