Health and the Web: UK Experience Professor Sir Michael Rawlins Chairman, National Institute for Health and Clinical Excellence And Professor of Clinical.

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Presentation transcript:

Health and the Web: UK Experience Professor Sir Michael Rawlins Chairman, National Institute for Health and Clinical Excellence And Professor of Clinical Pharmacology, Newcastle upon Tyne

Scope 1. Healthcare and the Web: UK Overview 2. NICE and the Web - Developing guidance - Disseminating guidance

UK overview: general 1. Information -Public -Professional 2. Communications -Between professionals -Between professionals and patients 3. Research -Clinical trials -Patient monitoring

UK overview: the NHS Primary care -Health records -Prescribing -Hospital appointments Secondary care -Patchy

To provide professional staff with advice on: securing the highest attainable standards of clinical care for National Health Service patients promoting and sustaining the public health NICEs Purpose

NICE: setting standards For clinicians: Use of individual health technologies Management of conditions For public health professionals: Single interventions Programmes Effectiveness in practice Cost effectiveness

The virtual Institute NICE Appraisal Committees Technology Assessment Groups Interventional Procedures Specialist advisors Collaborating Centres (clinical guidelines) GDGs PDGs (Public health) Public health interventions Collaborating Centres (public health)

Developing NICE guidance Critical features: Clinically/scientifically robust Inclusive Transparent Independent

Disseminating NICE guidance Predominantly web-based: Full guidance Short forms of guidance Supporting evidence base

Monthly page requests

Monthly unique visitors

Monthly visitor sessions

Current in May 2006 Page requests:6.2 million 200 Gigabytes newsletter:>35,000 registered updates:up to 6,000 per day

Visitors 56.3% 43.4%

Disseminating NICE guidance Limitations: 1. Short formats How short? For what purpose? 2. Patient formats Access?

The future? 1.Developing the evidence? 2.Disseminating the guidance? 3.Discovering societal preferences?

Evidence development 1. Web-based approaches to clinical trial registries 2. Web-based approaches to conducting clinical trials 3. Web-based approaches to developing and maintaining registries 4.Web-based access to results of clinical trials

Disseminating guidance Professionals: PCs, hand-helds alerts Format(s) Revisions/updates Self-learning modules (CPD) Patients, families, carers ??????

Societal preferences (1) NICEs Citizens Council: Stratified random sample – age and gender – socio-economic status – ethnicity and disability – geography Thirty members Cross-section – not representative Deliberative democracy

Citizens council (2005)

Societal preferences (2) What is needed: Broader representation (n=300 or 3000) Retaining the deliberative element Could the web help?

For more about NICE….