A National Technical Assistance System for EHDI Programs.

Slides:



Advertisements
Similar presentations
Chapter 30 Early Intervention Overview Rationale for early intervention services Principles of early intervention Services and supports available for early.
Advertisements

Meeting the AT Needs of Preschool Students Under The IDEA Ronald M. Hager, Esq., Senior Staff Attorney, National Disability Rights Network, Washington,
Health and Wellness for all Arizonans azdhs.gov Dr Bradley Golner, MD Phoenix Pediatrics Az EHDI Chapter Champion.
Using Part C of IDEA to Support Statewide EHDI Programs Karl White, Ph.D. National Center for Hearing Assessment and Management Utah State University
Primary Goal I - Identification/Screening1 month D - Diagnosis/Evaluation3 months E - Early Intervention6 months A - Additional Assessment(s) L - Linking.
Issues in Implementing Early Hearing Detection and Intervention Programs.
Early Hearing Detection and Intervention (EHDI) ~ Challenges and Opportunities ~
Evaluation of a of a Statewide Early Hearing Detection and Intervention Program Karen M. Ditty, M.S.,CCC-A National Center for Hearing Assessment and Management.
Tracking and Data Management Technical Assistance Workshop for Universal Newborn Hearing Screening and Intervention Margaret Lubke, Ph.D. National Center.
Evaluation of EHDI Programs National EHDI Coordinators Meeting Author and Presenter: Janet M. Farrell, Program Director MA Universal Newborn Hearing Screening.
Evaluation Utahs Early Hearing Detection and Intervention Program of Karl R. White, PhD National Center for Hearing Assessment and Management Utah State.
Data and Patient Information Management Systems for Early Hearing Detection and Intervention Programs.
The Physicians Role in the Development of Effective Early Hearing Detection and Intervention Programs.
A National Technical Assistance System for Early Hearing Detection and Intervention Programs in the United States.
EHDI Systems and the Medical Home Carlos Quezada-Gomez, PsyD National Center of Medical Home Initiatives for Children with Special Needs American Academy.
The Status of Early Hearing Detection and Intervention in the United States.
EHDI Information Management Les R. Schmeltz, MS, CCC-A Iowa Les R. Schmeltz, MS, CCC-A Iowa.
Support for Implementation of Early Hearing Detection and Intervention Programs Les Schmeltz National Center for Hearing Assessment and Management Utah.
Reaching Out to Professionals: Workshop Development
Iowa EHDI: Enrolling children in appropriate early intervention Lenore Holte, Ph.D., CCC-A Center for Disabilities and Development University of Iowa.
Texas Early Hearing Detection and Intervention Finding Lost EHDI Babies The Answer May Be Right in Front of You Doug Dittfurth Texas Department of Assistive.
Simplifying Reporting of Communication Development Outcomes for Infants and Toddlers with Hearing Loss Karen Anderson, PhD Florida EHDI Audiology Consultant.
ECHOs of EHDI: ECHOs of EHDI: How Periodic Early Childhood Screening is Growing William Eiserman, PhD, Lenore Shisler, MS, Terry Foust, AuD - CCC-A, Randi.
Is Early Intervention Necessary for All? Ruth Fox, RN, MS, New Hampshire EHDI Program Coordinator Mary Jane Sullivan, Au D, New Hampshire EHDI Consulting.
Indianas Universal Newborn Hearing Screening Program Weilin Long, M.A., M.P.A. Indiana State Department of Health Newborn Screening Section.
Engaging Audiologists in EHDI Data Systems Les R. Schmeltz, Au.D. NCHAM & Arizona School of Health Sciences Randi Winston, Au.D. NCHAM & The EAR Foundation.
CDC EHDI RESOURCES for States. CDC EHDI Website CDC EHDI Website Purpose: To provide up-to-date.
Early Hearing Detection and Intervention in Mississippi EHDI-M Overcoming Barriers to Timely Diagnosis of Hearing Loss.
Opening Session: Collaboration is Key! Kathryn Piziali Nichol, MD, FAAP American Academy of Pediatrics February 18, 2004.
Arizona EHDI A Collaborative Approach. 100% Voluntary 47 Hospitals.
Health Resources and Services Administration Maternal and Child Health Bureau Health Resources and Services Administration Maternal and Child Health Bureau.
Universal Newborn Hearing Screening and Intervention Evaluation Shanna Shulman, PhD Melanie Besculides, DrPH Shanna Shulman, PhD Melanie Besculides, DrPH.
Minnesota: “1-3-6” Early Intervention by 6 Mo.
An Audiological Management Manual for UNHS Referrals Antonia Brancia Maxon, Ph.D. Karen Ditty, M.S. Kathleen Watts, M.A. Diane Sabo, Ph.D. Karen Munoz,
Effective Hearing Screening Practices in Health Care Settings Randi Winston, William Eiserman, Lenore Shisler.
Remedies to EHDI Challenges in the Last Frontier-Alaska Margaret Lanier Kossler, MPH,CHES EHDI Program Manager
Evaluation of EHDI Programs Terry Foust Karen Muñoz Kathleen Watts NCHAM Technical Assistance.
Attitudes, Knowledge and Practices of Physicians Related to EHDI National EHDI Conference Feb, 2006 Mary Pat Moeller, Ph.D. Boys Town National Research.
Status of EHDI Programs in the United States Universal Newborn Hearing Screening Effective Tracking and Follow-up as a part of the Public Health System.
National EHDI Technical Assistance System at Utah State University.
Health Resources and Services Administration Maternal and Child Health Bureau Health Resources and Services Administration Maternal and Child Health Bureau.
The Ethics of Serving Infants and Their Families Les R. Schmeltz, Au.D. NCHAM & Arizona School of Health Sciences Karen Munoz, M.S. NCHAM & Northern Illinois.
Oral Health Project Activities to Support Head Start Staff Katrina Holt, M.P.H., M.S., R.D.
Missouri Newborn Hearing Screening: A status report Jenna M. Bollinger, B.A. Department of Communication Disorders & Deaf Education Fontbonne University.
Early Hearing Detection and Intervention (EHDI) ~ Challenges and Opportunities ~
CSHCS Strategic Planning Michigan Issues George Baker, MD I. CSHCN Definition II. System of Care.
I HEAR Manitoba (Infant Hearing Early Assessment & Referral) Leanne Gardiner, Au.D. Coordinator- Infant Hearing Screening Program.
Administrator Checklist Research and Training Center on Service Coordination.
Increasing Access to Hearing Screening for Out of Hospital Births.
Screening Implementation: Referral and Follow-up What Do You Do When the Screening Test Is of Concern? Paul H. Lipkin, MD D-PIP Training Workshop June.
New York State Department of Health Outcomes of New York’s Newborn Hearing Screening Program Lynn Spivak, Ph.D., CCC-A Connie Donohue, M.A., CCC-A.
Focused Monitoring for Newborn Hearing Screening Programs EDHI Conference 2004 Linda Pippins, MCD Amy Fass, MPH Christy Fontenot, MS.
RECIPIENT: PAKISTAN Country Specific Project. Activities Program Support Cost A. Total program support cost for 3 yrs staff cost, office supplies office.
EHDI Information Management Systems: A Tool For Follow-up Les R. Schmeltz, Au.D. NCHAM.
Jim O’Brien Head Start Bureau Health and Disabilities Services Branch 330 C Street, SW Washington, DC Phone: (202)
Evaluation of EHDI Programs ________________________ Terry Foust, Au.D., CCC-A/SLP Karen Muñoz, Ph.D., CCC-A Kathleen Watts, M.S. National Center for Hearing.
A Medical Home for Children with Hearing Loss Julia L. Hecht, M.D., Deaf Access Program Albuquerque, New Mexico.
EVALUATING AN EHDI SYSTEM: PARENT SURVEY PROJECT Vickie Thomson, MA State EHDI Coordinator Colorado Department of Public Health and Environment Janet DesGeorges.
EHDI Interoperability Stages and Ages of Care from Birthing Facility to Health Department to Medical Home to Family Home.
An Analysis of “Lost To Follow-up” Infants Les R. Schmeltz, Au.D. NCHAM Mississippi Bend AEA-Iowa.
The birth hospital is the first step to identifying newborn hearing loss and to educate and guide families on newborn hearing. There are many opportunities.
The Early Hearing Detection & Intervention Program Overview
Carmen M. Sánchez February 6, 2018
Barriers to Follow-up in Newborn Hearing Screening Programs
Blindness separates people from things.
First Annual National EHDI Meeting
Organizing the Hospital Program
Connecting Point 3223 N Oliver Avenue Wichita, KS 67202
Identifying Qualified Audiologists for Assessment of Babies
Tracking and Data Management
Presentation transcript:

A National Technical Assistance System for EHDI Programs

Number of Hospitals Doing Universal Newborn Hearing Screening Number of Programs

Status of Universal Newborn Hearing Screening in the United States.. Percentage of Births Screened 90% % % %

Tremendous Progress During the Last Decade Less than 30 hospitals with UNHS in 1993; compared with almost 1400 in May of million babies are screened every year prior to discharge 33 states have passed newborn hearing screening legislation The federal government is providing financial support to encourage expansion

The Other Side of the Coin.... 2,800 hospitals are not yet screening for hearing loss 2 million babies are NOT screened every year prior to discharge Many states which have passed legislation have not yet implemented it completely Only 9 states (accounting for 7% of the births) have implemented reasonable state-wide programs

Status of EHDI Programs in the United States Universal Newborn Hearing Screening Effective Tracking and Follow-up as a part of the Public Health System Appropriate and Timely Diagnosis of the Hearing Loss Prompt Enrollment in Appropriate Early Intervention A Medical Home for all Newborns Culturally Competent Family Support Elimination of geographic and financial barriers to service access

Efforts by the Federal Government to Promote Early Identification of Hearing Loss Federal funding for research and program development NIH Consensus Development Conference in 1993 Consortium for Universal Newborn Hearing Screening funded in 1993 Marion Downs National Center for Infant Hearing Established in 1996 National EHDI Technical Assistance System Established in 2000

Goal of the National EHDI Technical Assistance System Every child born with a hearing loss will be identified before 3 months of age and provided with timely and appropriate early intervention before 6 months of age Every family of an infant with hearing loss will receive culturally competent family support as desired All newborns will have a medical home State will have tracking and data management systems which are linked to appropriate public health information systems

National EHDI Technical Assistance System EHDI Network members located in each of ten geographic regions

Region I (38% currently born in UNHS hospitals) Antonia MaxonB Region IV (46% currently born in UNHS hospitals) Faye McCollister Region III (49% currently born in UNHS hospitals) Sean Kastetter Region VI (38% currently born in UNHS hospitals) Karen Ditty Patti Martin Region VII (33% currently born in UNHS hospitals) Les Schmeltz Region IX (23% currently born in UNHS hospitals) Randi Winston Yusnita Weirather Region II (16% currently born in UNHS hospitals) Beth Prieve Region V (26% currently born in UNHS hospitals) Karen Munoz Region X (21% currently born in UNHS hospitals) Curt Whitcomb Region VIII (91% currently born in UNHS hospitals) Terry Foust National EHDI Assistance Network - VIII IX VII VI V IV III II I X Guam, American Samoa, Marshall Islands, Palau, No. Mariana Islands, Fed. Micronesia Puerto Rico Virgin Islands = indicates the locations of MCHB Regional Offices

Examples of Network Activities Training of Trainers Workshop (October 2000) Individualized TA with state EHDI programs NEC*TAS Webcast for Part C Programs MCHB Grant Assistance Workshop May 2001 Regional workshops on Diagnostic ABR (planned for Oct 2001)

Regional Workshops on Audiological Diagnosis First year will focus on diagnostic ABR (subsequent years on behavioral techniques and hearing aid fitting) Online materials for mastery learning prior to workshops Hands-on small group workshop Supervised practicum in local area following workshop

National EHDI Technical Assistance System (continued) EHDI Network members located in each of the MCHB regions Information dissemination and training

Support for Program Implementation Step-by-step Implementation Guide Distributed by MCHB to all birthing facilities in the US Down load from the web at Linked to examples of materials from existing programs

Contents of Implementation Guide Enlisting support Determining a protocol Dealing with procedural issues Communicating with parents, physicians, etc. Training screeners Keeping referral rates low Managing data and follow-up Financing the program Reporting Completing diagnostics Coordinating with state systems

Sound Ideas Newsletter Published Quarterly Topical articles, suggestions for program improvement Upcoming events Available online or mailed

National EHDI Technical Assistance System (continued) EHDI Network members located in each of the MCHB regions Information dissemination and training Web site (

National EHDI Technical Assistance System (continued) EHDI Network members located in each of the MCHB regions Information dissemination and training Web site ( Collaboration with other groups and agencies

National EHDI Technical Assistance System (continued) Groups actively promoting and assisting with EHDI activities –AG Bell, NCHH, ASHA, AAA, JCIH, AAP, ASDC Relevant groups whose main focus is elsewhere –MCHB Regional Staff, SKI-HI, NEC*TAS, Early Head Start, 0-3, Family Voices, NCCC, KidsNET, STC, AMCHP, AHEC Collaboration with Other Groups and Agencies