Taking EHDIs Pulse: Conferences as Strategic Change Agents National EHDI 2007 Conference Salt Lake City, UT March 26, 2007 Nicole Brown, MSN,PHN, CPNP Molly Crawford, MS Penny Hatcher, RN, MSN, DrPH, PHN

Faculty Disclosure Information In the past 12 months, I have not had a significant financial interest or other relationship with the manufacturer(s) of the product(s) or provider(s) of the service(s) that will be discussed in my presentation. This presentation will not include discussion of pharmaceuticals or devices that have not been approved by the FDA or if you will be discussing unapproved or "off-label" uses of pharmaceuticals or devices.

The Minnesota Summit

Objectives: Identify and implement at least 2 skills to provide culturally appropriate services. Develop a regional action plan to address in local communities. Develop relationships among state, regional, and local partners and families. Articulate the current status of EHDI in MN especially strengths and areas for improvement.

Minnesotas Background ~70,500 Births Annually Voluntary Hearing Screening –108 birthing hospitals (100%) –Results reporting (85%) –~87% Screened EHDI/UNHSI program funded by grants from MCHB and CDC

Minnesotas Background Integrated with bloodspot screening Borders ND, SD,IA, WI 16 Regional EHDI teams –D/HH Teacher, Audiologist, Special Ed. Teacher –Build local capacity for EHDI –State EHDI workgroup (Depts. of Education, Human Services, Health)

Minnesotas EHDI Challenges Decentralized education system –Part C eligibility criteria revision Localized public health system Limited data sharing (HIPAA, FERPA, etc.) Lack of pediatric specialists

Moving EHDI to the Next Level Focus shifting from screening to follow up Need for further collaboration from multiple partners –Duplication of efforts –Gaps in statewide surveillance system Legislation

Why A Minnesota Summit ? Available Funding Good strategy to bring together decentralized and localized partners Efficient tool to convey information to varied audiences Created an organized and systematic approach to move forward Taking EHDIs pulse

Why A Minnesota Summit ? Available Funding Good strategy to bring together decentralized and localized partners Efficient tool to convey information to varied audiences Created an organized and systematic approach to move forward Taking EHDIs pulse

Strategy to Bring Together Partners 150 Attendees Health professionals Parents Educators Early interventionists Offered continuing education for 6 disciplines Border state incentives

Why A Minnesota Summit ? Available Funding Good strategy to bring together decentralized and localized partners Efficient tool to convey information to varied audiences Created an organized and systematic approach to move forward Taking EHDIs pulse

Information to Varied Audiences –Key messages & common goals –Recognition dinner & full-day conference –Vendors and exhibitors (23) –National & local speakers (32)

Information to Varied Audiences Speakers presented: –Up-to-date information about hearing loss –Collaboration among professional specialties –Early medical and educational interventions –Genetics –Financial assistance and other resources –New technology –Next steps for MN newborn screening

Why A Minnesota Summit ? Available Funding Good strategy to bring together decentralized and localized partners Efficient tool to convey information to varied audiences Created an organized and systematic approach to move forward Taking EHDIs pulse

An Approach to Move Forward –Provided insight for future education and awareness activities EHDI Regional Teams

Why A Minnesota Summit ? Available Funding Good strategy to bring together decentralized and localized partners Efficient tool to convey information to varied audiences Created an organized and systematic approach to move forward Taking EHDIs pulse

Taking EHDIs Pulse Incorporated measurement tools –On-site evaluations (81) –Pre-test on-site (80) –Post-test survey on Zoomerang (61) –Long-term evaluation on Zoomerang (36) Incorporated follow up –Call-to-action form on-site (72)

Call to Action Unique Reminder Triplicate form helped to share goals and follow up participants actions: –Fostered responsibility and accountability for EHDI success locally and statewide. –Highlighted and reinforced 16-regional teams as framework for local partnerships. –Provided a take-away action plan.

Lessons Learned Online registration and detailed Web information

Lessons Learned Online evaluation and surveys – reminders with links. Marketing –MDs/PNPs need at least one-year notice On-site helpers are critical –student workers

Lessons Learned A mixture of offerings is important –Social, educational, & informational –high-level & family- focused

Tips for Conference Planning Look for funding opportunities –CDC Public Health Conference Support Grant –Sponsorshipspublic and private health care organizations and insurers Manufacturers - donate equipment and prizes –Lions and Sertoma Clubs –Education reserves

Tips for Conference Planning Look to partners for funding and shared sponsorship –Education, Part C funds –Human Services

Tips for Conference Planning Look for existing opportunities –Add a pre or post-conference event or activity to an existing conference or annual event –Market your event through existing mailing lists, organizations, Internet list serves, word of mouth

Tips for Conference Planning Incorporate effective measurement tools. –Consider online tools Survey Monkey, Zoomerang, etc. Incorporate tools to continue the momentum. –Encourage continued relationships by providing participants with contact info for other participants, speakers, exhibitors –Provide participants with tools for follow-up –Outline next steps

The Minnesota Summit

More Information MDH web site: Contact: Nicole Brown, MSN, PHN, CPNP UNHSI Program Coordinator (phone) THANK YOU!