Organ and Tissue Donation Saving and Healing Lives

NORTHEAST Lifebanc (Organ and Tissue) Eversight Ohio (Eye) Cleveland Clinic (Transplant Center) University Hospitals Medical Center of Cleveland (Transplant Center) CENTRAL & SOUTHEAST Lifeline of Ohio (Organ, Eye and Tissue) Central Ohio Lions Eye Bank (Eye) The Ohio State University Wexner Medical Center (Transplant Center) Nationwide Children’s Hospital (Transplant Center) SOUTHWEST Life Center (Organ and Tissue) Cincinnati Eye Bank (Eye) Children’s Hospital Medical Center (Transplant Center) The Christ Hospital (Transplant Center) University of Cincinnati/University Hospital (Transplant Center) NORTHWEST & WEST CENTRAL Life Connection of Ohio (Organ) Community Tissue Services (Eye and Tissue) Lions Eye Bank of West Central Ohio (Eye) University of Toledo Medical Center (Transplant Center) Ohio’s Organ, Eye & Tissue Recovery Organizations and Transplant Centers Denotes counties shared by organ procurement organizations

Regulatory Agencies U.S. Health and Human Services Administration Centers for Medicare and Medicaid Services Association of Organ Procurement Organizations American Association of Tissue Banks Food and Drug Administration United Network of Organ Sharing Clinical Laboratory Improvement Amendments Occupational Safety and Health Administration

The Donation Process Referral Brain Death Authorization Donor management /organ allocation Recovery After Care

The Need The national waiting list for organ transplants is rising at an alarming rate, with 122,395 individuals currently on the list.  Ohio: 3,427 people are waiting for an organ transplant, and hundreds more await tissue transplants; 22 times each day in the U.S. a man, woman or child dies while waiting for an organ transplant;  Every 48 hours, an Ohioan dies waiting. In the last 10 years more than 2,000 Ohioans have died waiting for a transplant; 29,533 transplants were performed in the United States in 2014; and 5,818 were living donations. Each year nearly one million Americans receive a donated tissue transplant. 42,000 Americans receive a cornea transplant annually.

How is Ohio doing? In 2014, 325 Ohioans shared the Gift of Life through organ donation at the time of their death. 1,238 individuals received a second chance at life through transplantation at Ohio’s 8 prestigious transplant centers in 2014, 295 were from living donors; 1,939 Ohioans gave improved quality of life to others through tissue donation last year. 3,118 Ohioans gave the gift of sight through cornea donation in 2014.

Ohio Legislation Affecting Donation Currently House Bill 137 House Education Committee) Requiring donation education in Ohio high school health curriculum Uniform Anatomical Gift Act (1968, Ohio Update, 2009): ORC st Person Authorized Donation via the Ohio Donor Registry (2000) July 1, 1997 Second Chance Trust Fund is established through $1 donations at Bureau of Motor Vehicles (1996) Grant funding begins in 2001 Mandatory Education in Driver’s Education Programs (2004) Materials provided by the Second Chance Trust Fund Living Donor State Tax Credit up to $10,000 (2007) Donate Life Ohio License Plates (2007) Biennial Budget Bill signed by Governor Kasich on June 30, 2013 changed the necessity for Deputy Registrars at the Ohio Bureau of Motor Vehicles to recertify individuals who have already placed their names in the Ohio Donor Registry.

The Ohio Donor Registry Established on July 1, 2002 by the Ohio Legislature Opt-In Registry A “yes” indicates an advance directive to recover organs, tissues and eyes “for any purpose authorized by law” Considered a model registry across the nation

How Does an Ohioan Register? At the BMV when renewing or receiving a license or state Identification card *On-line at or Swipe Technologywww.donatelifeohio.org *Mail-in form to BMV. * Allows registrants to restrict donation of specific organs or tissues and/or limit uses.

Ohio Donor Registry Growth

Ohio Donor Registry by Age Group

What Are the Barriers to Registration? Education / Information Common Myths and Misconceptions  # 1: “They Won’t Work To Save My Life at the Hospital if I have Organ Donor on My License.”  I am too old  I have a pre-existing medical condition  It’s against my religion.  My family wants to have an open casket funeral  It will cost my family money.

Do Ohioans Want to Donate? More than 93% of all Ohioans have a positive attitude about donation for transplant.* More than 80% of all Ohioans would want to donate organs at the time of their death.* More than 90% express a wish to help others. * 63% say they have discussed their wishes for donation with their family or next of kin.* 57.86% of all Ohio licensed drivers and state ID holders are registered organ donors. ** * Anatomical Gift Family Survey, University of Cincinnati, January 2010 ** Ohio Bureau of Motor Vehicles, December 2014

Waitlist- All Centers

Wait List by Center

Wait List Additions

Number of Eligible Donors

Donation Rate

Number of Non-DCD Deceased Donors < 71

Number of Other Deceased Donors

Total Number of Deceased Donors

Living Donors

Number of Organs Transplanted

Deceased Donors by Mechanism

HISTORY OF TRANSPLANT GAMES OF AMERICA The Donate Life Transplant Games is a multi-sport festival event produced by the Transplant Games of America for individuals who have undergone life-saving transplant surgeries. Competition events are open to living donors, organ transplant recipients, bone marrow, corneal and tissue transplant recipients. More than an athletic event, the Donate Life Transplant Games highlight the critical importance of organ, eye, and tissue donation, while celebrating the lives of organ donors and recipients. About: Founded in 1990 by Sandoz (Novartis) The games are meant to call attention to the critical organ shortage in the U.S., where 125,000 people are on a waiting list, and to celebrate the achievements of those fortunate enough to be in good health following a transplant Transplant Games of America became independently run by a private organization Numbers: More than 3,764 registrations in Houston, Texas (2014) 1,700 participated in Grand Rapids, Michigan (2012)

HOW TO PARTICIPATE IN THE GAMES Organ, eye, tissue and bone marrow transplant recipients and living donors compete for gold, silver and bronze medals in individual and relay events. There are two divisions of competition in which men, women, and youth will compete against each other. Division I: Solid Organ Transplant Recipients Division II: Living Donors, Corneal & Tissue Recipients Age Categories: Athletes will compete in the following youth and adult age categories. Youth: 5 & Under, 6-10 years, years Adult: years, years, years, years, years, years, 70+ There are also many ancillary programs and workshops to promote the legacy of organ, eye, tissue and bone marrow donation and transplantation and give support and celebration to the heroes that have given the gift of life. Donor Families are celebrated and honored during the opening and closing ceremonies, at the Donor Tribute and throughout the 5-days of the Games.

Sports: Badminton Ballroom Dancing Basketball (3-on-3) Bocce Bowling Cornhole Cycling Darts Golf Junior Olympiad Racquetball 5K Road Race Swimming Table Tennis Tennis Texas Hold-em Poker Track & Field Trivia Challenge Virtual Triathlon Volleyball Ancillary Events: Welcome Reception Opening Ceremony Donor Tribute Quarter Center Club Quilt Pinning Coffee House Donor/Recipient Bowling Workshop Program Closing Ceremony Farewell Reception 2016 TRANSPLANT GAMES JUNE 10 – JUNE 15, 2016

2016 Transplant Games Supporting Partners HOSTS Transplant Games of America Lifebanc Greater Cleveland Sports Commission Eversight of Ohio PARTNERS Eyebank of Cleveland Foundation Novartis Pharmaceuticals PLATINUM PRESENTING SPONSORS Genentech Astellas Cares Akron Children’s Hospital Cleveland Clinic University of Toledo Medical Center Ohio Solid Organ Transplantation Consortium Gift of Life Donor Program Community Tissue Services Gift of Life Michigan Life Center Life Gift Houston Life Connection of Ohio Lifeline of Ohio American Association of Tissue Banks (AATB) Donate Life Ohio LifeShare Transplant Donor Services Center for Recovery & Education One Legacy Savory Harvest Life Center Northwest Ryan Marketing Group Technologies Communications Direct West Michigan Sports Commission Harris County Houston Sports Authority

June 10 – 15, 2016 Cleveland, Ohio

THANK YOU! QUESTIONS?