Survivorship Self-management workstream: Carers of people living with and beyond cancer Charlotte Argyle Carers Support Manager Macmillan Cancer Support.

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Presentation transcript:

Survivorship Self-management workstream: Carers of people living with and beyond cancer Charlotte Argyle Carers Support Manager Macmillan Cancer Support

Carers in the UK 6 million carers in the UK 10% of adult population young carers 3

Carers of people with cancer 38% of carers of people with cancer > 30 hours/week caring 29% of carers of people with cancer: carer > 5 years. More likely to experience anxiety and depression

5 Issues facing carers of people with cancer Caring for someone with a fluctuating condition Outpatient treatment Long-term effects of illness and treatment

6 Emerging trends Working carers Caring from a distance

Impact of caring Health Financial Employment Social exclusion

What do carers of people with cancer need? Information and advice Practical support Emotional support A break! Respite 8

Self-management Coping skills training Adapting to a new normal life Communicating with health and social care professionals Lifestyle and behaviour coaching programme Information with support that helps to tailor to life and context.