June 2009 World Hospice and Palliative Care Day Discovering your voice

October | World Hospice and Palliative Care Day – Discovering your voice 2 World Hospice and Palliative Care Day Background Aims and objectives of World Day Annual activities Themes Impact World Day and advocacy strategies Challenges Advocacy successes Conclusion

October | World Hospice and Palliative Care Day – Discovering your voice 3 Background A unified day of action to celebrate and support hospice and palliative care worldwide Second Saturday of October An activity of the Worldwide Palliative Care Alliance Facilitated by Help the Hospices Global organising committee consisting of regional representatives worldwide

October | World Hospice and Palliative Care Day – Discovering your voice 4 Aims and objectives of World Day To share our vision to increase the availability of hospice and palliative care throughout the world by creating opportunities to speak out about the issues To raise awareness and understanding of the needs – medical, social, practical, spiritual – of people living with a life limiting illness and their families. To raise funds to support and develop hospice and palliative care services around the world.

October | World Hospice and Palliative Care Day – Discovering your voice 5 Annual activities Activities in approximately 70 countries worldwide Events worldwide registered online A unifying theme around palliative care issues Materials available online Messages of support Press and PR work Voices for Hospices every two years Global reports Other e.g. petition, declaration, merchandise Evaluation

October | World Hospice and Palliative Care Day – Discovering your voice 6 The themes over the years 2006 –Access for all 2007 –Across the ages from children to older people 2008 – Hospice and palliative care: a human right 2009 –Discovering your voice

October | World Hospice and Palliative Care Day – Discovering your voice 7 Impact

October | World Hospice and Palliative Care Day – Discovering your voice 8 Impact

October | World Hospice and Palliative Care Day – Discovering your voice 9 1. Issue identification 5. Identifying targets 3. Developing the advocacy message 6. Identifying allies 7. Identifying resources 8. Action plan and time frame 9. Implementation 10. Evaluation 2. Analysis 4. Goal and objectives Developing a strategy

October | World Hospice and Palliative Care Day – Discovering your voice 10 Benefits of using World Hospice and Palliative Care Day Opportunity to undertake activities Stronger together Reduces isolation Credibility - WHO co-sponsorship/ international partners One global theme Opportunity for coalition building A hook for PR and press work Resources prepared for adaptation Messages of support

October | World Hospice and Palliative Care Day – Discovering your voice 11 Missing key steps Lets do a concert Let’s invite all our database of contacts I know a famous singer Lets charge £10 for the tickets Let’s do a press release too What shall we do for the Day this year? Let’s do it alone to raise our organisation’s profile

October | World Hospice and Palliative Care Day – Discovering your voice Using World Day in your strategy IssueAnalysisActivity Target audience Using World Day Lack of funding People who used to donate are not giving any more because they have not been kept informed or involved. Re-engagement and motivational fundraising event. Existing donors who have lapsed. Event related to global theme. World Day materials. Branding. PR Lack of trained health care workers Palliative care is not in the national medical curricula due to lack of understanding and commitment by Deans of universities. Research, production of report and campaigning letter to deans Deans of university Use World Day materials. Support of WHO. Theme.

October | World Hospice and Palliative Care Day – Discovering your voice Creating a strategy around World Day World Day theme IssueAnalysisActivity Target audience Discovering your Voice Palliative care is not in national health plan. Lack of commitment by policy makers. Public pressure may work. Public letter writing campaign to ‘Discover the voice’ of policy makers on the issue. Policy makers Discovering your Voice Chinese community are not accessing palliative care. Because of lack of information and understanding about pc. Media and information campaign to reach out to Chinese community. Chinese community

October | World Hospice and Palliative Care Day – Discovering your voice 14 Building coalitions for World Day activities Health professionals Government Networks of people living with illnesses Patients, family and carers Volunteers Funders

October | World Hospice and Palliative Care Day – Discovering your voice 15 Resources –

October | World Hospice and Palliative Care Day – Discovering your voice 16 Resources on website Key messages Media toolkit Advocacy toolkit What is happening around the world Messages of support Template press releases Stories of people affected by hospice and palliative care around the world

October | World Hospice and Palliative Care Day – Discovering your voice 17 Challenges World Day fatigue Adapting the unifying theme Lack of funding and human resources to deliver activities Communication e.g. translation

October | World Hospice and Palliative Care Day – Discovering your voice 18 Examples of advocacy success stories Romania 2005 Kenya 2008 Mexico 2008

October | World Hospice and Palliative Care Day – Discovering your voice 19 Romania 2005 The problem People with life-limiting illness not being able to access pain relief Analysis Barriers identified included restrictive laws partly due to lack of commitment and understanding by key policy makers. Activity Used World Day as an advocacy opportunity to present materials and arrange lobbying meetings to push for change in law regarding opioids. Result Change in opiate legislation was adopted by parliament, a new task force was set up and a person was appointed for PC in the MoH

October | World Hospice and Palliative Care Day – Discovering your voice 20 Kenya 2008 The problem Hospice and palliative care not in the national health plan Analysis Lack of awareness about hospice and palliative care in Kenya Lack of commitment by government health officials Activity Walk for hospice and palliative care with 200 participants, speeches by government health officials and a performance by youth on the causes of Cancer and the transmission of HIV. Result The government health officials discussed in speeches the need for a: –Change in national health care programmes and policies –Increased understanding by government and policy makers Raised public understanding about hospice and palliative care through media, public engagement

October | World Hospice and Palliative Care Day – Discovering your voice 21

October | World Hospice and Palliative Care Day – Discovering your voice 22 Mexico Problem Lack of access to palliative care for people across the country. Analysis Palliative care not recognised as a human right and lack of public awareness about the issue and what palliative care as a human right means. Activity Media work, information campaign and linked with Human Rights Commission. Utilised the World Day global theme and the key messages. Result A newspaper article, magazine article, TV special and circulation of an explaining the meaning of ‘Palliative care: a human right’. The article was also published on the Mexican website of the Human Rights Commission.

October | World Hospice and Palliative Care Day – Discovering your voice 23 October Theme: Discovering your voice World Day and Voices for Hospices

October | World Hospice and Palliative Care Day – Discovering your voice 24 Contact us + 44 (0) We will be happy to do what we can to support your activities.