WRHA Palliative Care Program February 2013 Lori Embleton, Program Director Mike Harlos, Medical Director

Palliative Care Program Two streams of service delivery: Registration on Program Consultative Services

REGISTRATION ON PALLIATIVE CARE PROGRAM

Registration on Program Patients can be “registered” on the Palliative Care Program if they meet program criteria: Prognosis of less than 6 months No longer receiving aggressive treatment which requires on-going monitoring for and treatment of serious complications Have chosen a comfort-focused approach including a decision to decline attempted resuscitation

Registration on Program Once registered with the program, patients are eligible for: Case management through Palliative Care Coordinator Access to Community Palliative Care Nursing 24/7 Palliative Care Nurses have access to Palliative Care Physician Admission to Palliative Care Units (PCU) and Hospice – if bed available Enrollment on Provincial Palliative Care Drug Access Program

When to Register a Patient on Palliative Care Program Patients are considering going home from acute care Need to plan for services to be in place Patients being transferred to Long Term Care Setting

How to Register a Patient on PC Program Complete the “Application for Registration” form 2 page form “completed” forms can be processed more quickly Completed forms are reviewed by PC coordinator Accepts on to Program Rejects application – all reviewed by Manager, Program Director or Medical Director

Acute Palliative Care Units (PCU) Admission to PCU for symptom issues Physical symptoms Psycho-social distress Caregiver distress Admissions managed centrally by PC program staff Bed management guidelines

Acute Palliative Care Units St. Boniface Hospital 15 bed unit Access to tertiary care services Riverview Health Centre 30 bed unit (2 beds currently closed) Long term care facility

Acute Palliative Care Units Once symptoms are controlled, actively discharge to appropriate site Approximately 75% of patients die on PC unit Approximately 20% of patients are discharged home from Palliative Care Units Lack of care options if home not possible PCH Chronic Care Hospice

Hospice settings in WRHA Grace Hospice 12 beds in stand alone facility near Grace hospital RN staffing 24/7 Limitations in care that can be provided

Hospice settings in WRHA Jocelyn House 4 beds in split-level home in St. Vital RN staffing 4 hours a day – 5 days a week HCA provide care 24/7

Hospice Hospice is appropriate when: Symptoms well controlled Care needs are not complex Prognosis of 1 – 3 months Patients cannot or do not wish to be cared for in the community

Care at Home Majority of patients on Palliative Care program are in the community Palliative patients in community have same service limitations as all Home Care clients HCA and PSW services provided by Home Care Program Families/caregivers must be very involved in providing care

Community Teams: Community Nurses CNS MD Coordinator Psychosocial

Inter-professional Community Model Implementing EMR Will allow all members of Palliative Care team in community to chart on one charting system Will improve information sharing and communication between primary care providers (using EMR) and palliative care providers

CONSULTATION SERVICES

Consultative Services Available to anyone with a life limiting illness in any care setting for symptom management, psycho-social support or assistance with discharge planning Consultation services are provided by inter-professional team members including: Palliative Care Physician Palliative Care Clinical Nurse Specialist Psycho-social Support Specialist

When should Palliative Care be consulted? Assistance with symptom issues Managing Physical symptoms MD to MD consults for advice 24/7 Psycho-social Assistance with care planning What might care team expect as patient nears end of life? Will oral route be available? Could symptoms escalate?

When should Palliative Care be consulted? Goals of care are not clear Discrepancy between patient, family and/or members of care team with plan of care Discharge to community or LTC is anticipated Does patient need to be or are they currently “registered” on Palliative Care program? Would it be appropriate for Palliative Care nurse to see the patient in the community?

What information is needed on consult? Main reason for consult What is the main symptom issue? Urgency of consult Is the physician aware of the consult?

How to contact Palliative Care Program One number to call if you have questions or need a consultation during business hours: 204-237-2400 Do not page Palliative Care team members directly or leave messages regarding consults on their office phones.

How to contact Palliative Care Program Physician to physician consultation available 24 hours a day – 7 days a week: 204 – 237-2053

Community Palliative Nursing Consult Service Community Palliative Nursing Case Coordinator Admission Eligibility Medication Coverage comfort-focused prognosis “6 mo. or less” some treatment limitations (DNAR, no TPN, no chemoTx with high adverse effects aggressive, often toxic treatment focused on cure or life-prolonging disease modification Diagnosis of Life-Limiting Illness Transitioning to Palliative Palliative

Increase capacity through education, advocacy, Formal Program Palliative Care as a philosophy of care Resources Increase capacity through education, advocacy, partnerships