>>> www.psoriasis.org NPF OVERVIEW Kathleen Gallant National Psoriasis Foundation Trustee Secretary, IFPA National Psoriasis Foundation.

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Presentation transcript:

>>> NPF OVERVIEW Kathleen Gallant National Psoriasis Foundation Trustee Secretary, IFPA National Psoriasis Foundation

>>> Mission – To find a cure for psoriasis and psoriatic arthritis and to eliminate their devastating effects through research, advocacy and education Who We Are

>>> ▪ Founded in Portland, Oregon  40 employees ▪ Governed by Board of Trustees & Medical Advisory Board  Funded by individuals and corporations ▪ Patient advocacy organization: –Voice of the patient –Nation’s leading authority on psoriatic disease –Help patients overcome physical and emotional barriers ▪ Focus: Research, Education and Advocacy Who We Are

>>> ▪ To increase the Foundation’s development capacity ▪ To increase the Foundation's role as a catalyst for scientific discovery ▪ To accelerate the Foundation’s ability to change conditions and policies that pose barriers to the Mission Strategic Priorities

>>> ▪ To increase the capacity to effectively manage and treat psoriasis/psoriatic arthritis ▪ To expand the capacity of the Foundation through integrated community-based Divisions Strategic Priorities cont’d.

>>> ▪ Advocacy ▪ Access to Care □ Reform health plan policies □ Catalyst for appealing denials □ Policy intervention on emerging trends ▪ Legislation □ PPARCCA Bill □ CDC Patient Registry □ State legislation – phototherapy co-pays Partnering with Health Care Providers and Patients

>>> Discovery Grants: Basic science on disease origins and pathways - Immunology - Genetics - Pathways of tissue damage - Co-morbidities Translational Grants: Bridge to clinical applications Fellowships: To promote research as a career = funding the “best science” Research Mechanisms:

>>> How We Partner with Healthcare Providers Key Products

>>> How We Partner with Healthcare Providers Key Products

>>> How We Partner with Healthcare Providers Key Products

>>> How We Partner with Healthcare Providers Key Products

>>> How We Partner with Healthcare Providers Key Products

>>> Key Products

>>> Key Products

>>> Key Products Since 2007: Raised $3 million USD Over 10,000 participants FY 2011 = 21 cities

>>> Key Products

>>> Thank you