February 13, 2002CDC/MCHB1 NATIONAL EHDI MEETING February 13, 2002 MICHIGAN DEPARTMENT OF COMMUNITY HEALTH TRACKING FROM BIRTH

February 13, 2002CDC/MCHB2 LEGISLATION No enacted legislation Two pending State Bills Medicaid (June, 2000) policy requiring all newborns have a hearing screen in-hospital or within first month of life

February 13, 2002CDC/MCHB3 POPULATING THE DATABASE/ DATA ITEMS Reporting through metabolic screening with a separate pull out hearing card Hospitals have responded well to this system as it is familiar Hearing does not interfere with other reporting to MDCH

February 13, 2002CDC/MCHB4 DataBase Tracking MDCH currently uses FOXPRO software for blood spot screening Because newborn hearing is linked to that database, we also use FOXPRO Both databases have converted to an Access program for report generation

February 13, 2002CDC/MCHB5 HEARING SCREEN PAGE BAR CODE FOR MATCHING RED NUMBER IS INVENTORY NUMBER BLUE AREA FOR HEARING RESULTSFOURTH SHEET ON CARD BENEATH NBS SHEETS

February 13, 2002CDC/MCHB6 EFFECTIVENESS OF SYSTEM Process has been well accepted as hospitals are accustomed to system Has made NBS look at data integration as important relative to the finding of newborns with missed screens

February 13, 2002CDC/MCHB7 BIRTH CERTIFICATES/ DATA INTEGRATION Three projects are occurring –Data integration with Michigan Birth Defects Registry –Pilot project for hospitals to use electronic birth certificate system for reporting hearing –Medicaid integrated data system

February 13, 2002CDC/MCHB8 Case finding project with Vital Records, Birth Defects Registry (BDR) to capture reported hearing loss. – EHDI to BDR (confirms DX codes and adds new cases to database) –BDR to EHDI (adds new cases to ensure follow-up for infants) BDR is reported monthly by law Birth Defects Registry

February 13, 2002CDC/MCHB9 Approximately 80% of Michigan birth certificates are reported electronically bi-weekly 100% reported within four weeks Exploring Web based reporting of birth certificates Electronic Birth Certificates

February 13, 2002CDC/MCHB10 Michigan’s Medicaid system is also developing a statewide system to store and integrate data – Executive Information System/ Decision Support System –Enhance Medicaid information by identifying patterns of behavior across recipients and providers –Build supporting infrastructure to expand integration, access and analysis of data

February 13, 2002CDC/MCHB11 HEALTH CARE PROVIDER REPORTING/COLLABORATION Michigan’s EHDI Program receives information in a variety of ways –Primary care physicians/clinics –Part C of IDEA (Early On) –State audiologists –Maternal Support System/Infant Support System (Medicaid program)

February 13, 2002CDC/MCHB12 Counties with All Students Achieve Program-Parent Information and Education grant participants Children’s Special Health Care Services Local Public Health Nursing contacts Have shared information with WIC and information will be added to their intake histories on newborn hearing and possible acquired hearing loss concerns for the older age group

February 13, 2002CDC/MCHB13 We have developed a system of facsimile forms to notify and receive information back from collaborating providers Many audiologists use a reporting form, but we accept their audiological reports in FAX or written form

February 13, 2002CDC/MCHB14 PARENTS AND FAMILY Hospitals have been asked to notify parents of the hospital newborn hearing screen We also request that they share our brochure or one they have developed with families

February 13, 2002CDC/MCHB15 In March of 2001, we developed a parent signature form allowing the EHDI program to refer, follow-up and collect pertinent information We have supplemented hospital efforts with information to prenatal classes We also have a new parent consultant who has developed information systems for parents

February 13, 2002CDC/MCHB16 CONTACT INFORMATION Anne Jarrett, Follow-Up Consultant –517/ Debby Behringer, Com. Dev Consultant –517/ Amy Lester, Parent Consultant –517/ FAX 517/