Indiana Newborn Hearing Screening Children and Family Health Services Commission Indiana State Department of Health Weilin Long, M.A., M.P.A Director of Newborn Screening Programs

Why Newborn Hearing Screening Significant hearing loss in newborns is present in approximately 250 babies per year in Indiana.

Indiana Newborn Hearing Screening Law Legislative mandated program IC “… every infant shall be given a physiologic hearing screening examination at the earliest feasible time for the detection of hearing impairments.”

Mission Statement Ensure that all newborns receive state-mandated physiologic hearing screening. Collaborate with FIRST STEPS, FSSA to ensure that infants who test positive for hearing loss receive appropriate intervention/ treatment and that their parents receive appropriate support/counseling. To collect information on the incidence of hearing loss. Promote public awareness and education concerning hearing conditions.

Program Goals Physically screen all infants born in Indiana prior to discharge; Perform diagnostic evaluation by three months of age; and Enroll in early intervention by six months of age.

Indiana’s Progress Less than 18% hospitals with UNHS program in % hospitals with UNHS in 1996

Indiana’s Progress Law was passed in May 1999 Program was fully implemented in July % of the hospitals participated in % participated in 2001

Indiana’s Progress “EXCELLENT” National Campaign for Hearing Health for the State’s Infant Hearing Screening Program

Program Status 100% of the Hospitals/Birthing Institutions reported. 97% of infants born in IN were screened. 10% did not pass initial screening. 98% of those who did not pass initial screening received repeat screening. 1.7% did not pass repeat screening. 1,966 referrals were made – 1,142 to the First Steps, 535 to PCP, and 289 to specialists.

Program Status 1,142 infants were referred to the First Steps 24% of them were identified with hearing loss 51% of infants identified with hearing loss were enrolled in early intervention programs by six months of age.

Indiana Newborn Hearing Screening Collaboration is the key to ensure enrolling children with hearing loss to early intervention programs by six months of age.

Indiana Newborn Hearing Screening Screening prior to discharge Timely referral and reporting to First Steps early intervention services Accurate and timely tracking and follow- up First Steps 45 calendar days time line Linkage to medical homes

Key Players Professional sensibility/concerns Parent/consumer advocacy IPN’s subcommittee Advisory Committee appointed by the Governor ISDH in collaboration with First Steps, Indiana School for the Deaf, hospitals, local health department Regional consultants – funded through MCHS grant

Indiana Newborn Hearing Screening Program MCHB Grant awarded allows Indiana to expand current hospital-centered hearing screening program to a statewide family centered, culturally sensitive, community based program.

LaGrange  LaGrange Hosp Steuben  Cameron Mem Hosp DeKalb DeKalb Mem Hosp Noble  Parkview Noble Hosp Whitley  Whitley Mem Hosp Allen  Lutheran Hosp  Parkview Mem  St Joe Med Cen – Ft Wayne Wabash Co Hosp Hunt- ington  Parkview Health Center Adams Co Mem Hosp Wells  Bluffton Med Center  Caylor-Nickel Hosp Grant Marion Gen Hosp Black ford Blackford  Blackford Co Hosp Elkhart  Elkhart  Gen Hosp  Goshen  Gen Hosp Kosciusko  Kosciusko Comm Hosp St. Joseph LaPorte  LaPorte Hosp  St Anthony Hosp Mich City Porter  Portage Comm Hosp  Porter Mem Hosp Lake  Comm Hosp of Munster  Methodist Hosp Gary  Methodist Hosp Merrillville  Saint Anthony Med Cen of Crown Point  Saint Catherine Hosp of East Chicago  Saint Margaret Mercy – Hammond  Saint Margaret Mercy –Dyer  Saint Mary's Med Cen - Hobart St. Joseph  Ancilla Health Care  Mem Hosp – South Bend  St Joseph Med Cen – South Bend Marshall  CommHos  St Joe Hos Marshall Co Starke  Starke Mem Hosp Fulton  Woodlawn Hosp Pulaski  Pulaski Mem Hosp Jasper  Jasper Co Hosp New ton Benton Jay  Jay Co Hosp Randolph  St Vincent Randolph Hosp Delaware  Ball Mem Hosp MadisonMadison Hancock  Hancock Mem Hosp Wayne  Reid Hosp & Health Care Ctr Henry  Henry Co Mem Hosp Madison  Community Hosp of Anderson  St John Med Center  St Vincent Mercy Hosp – Elwood Union Fayette Mem Hosp Rush Shelby Major Hosp Franklin Decatur  Decatur Mem Hosp Dearborn Ohio Switzerland Ripley  Margaret Mary Comm Hosp Jennings Jefferson  King’s Daughters Hosp Barthol omew  Columbus Reg Hosp Brown Jackson  Memorial Hosp Seymour Washington  Wash. Co Mem Hosp Scott Clark  Clark Mem Hosp Floyd Dearborn  Dearborn Hosp Johnson  Johnson Mem Hosp Marion  Columbia Women's Hosp of Indpls  Community Hosp of Indpls 1-East, 2-North, 3-South  Methodist Hosp Indpls  Nurse Midwives  Riley Hosp - Data Management Off.  St Francis Hosp. Center  St Vincent Hosp & Health Care Center  Wishard Mem Hosp  University Hospital Floyd  Floyd Mem Hosp Scott  Scott Co Mem Hosp Harrison  Harrison Co Hosp Crawford Perry  Perry Co Mem Hosp Spencer Warrick Orange  Bloomington Hosp of Orange Co Posey Vander burgh Gibson  Gibson Gen Hosp Pike Dubois Vanderburgh  Deaconess Hosp  St Mary’s Med Center Evansville  St Mary’s Riverside Hosp Dubois  Memorial Hosp & Health Care – Jasper  St Joseph Hosp – Deaconess – Huntingburg Knox Good Samaritan Hosp Daviess  Daviess Co Hosp Martin Lawrence  Bedford Medical Ctr  Dunn Mem Hosp Monroe  Bloom ington Hosp Sullivan  Sullivan Co Comm Hosp Greene  Greene Co Gen Hosp Vigo Clay  St  Vincent Clay Co Owen Putnam  Putnam Co Hosp Parke V e r m i ll i o n Hendricks  Hendricks Comm Hosp Morgan Montgomery  St Clares Med Center Boone Hamilton  Riverview Hosp Tipton  Tipton Co Mem Hosp Clinton  St Vincent Franklin Hos Tippecanoe  Lafayette Home Hosp Fountain Warren Carroll Howard White  White Co Mem Hosp Cass  Logansport Mem Hosp Miami  Dukes Mem Hosp Vigo  Columbia Terre Haute  Union Hosp – Terre Haute Morgan  Morgan Co Mem Hosp  St Francis Hosp Mooresville Vermillion  West Central Community Hosp Howard  Howard Comm Hosp  St Joe Hosp/Health Care Ctr - Kokomo Map of Indiana - Outreach

Regional Outreach Program Refine Indiana’s UNHS through outreach activities Involve community /family Ensure locally available technical assistance to providers and consumers Promote timely diagnostic evaluation and early intervention services.

Challenges Integrated data system Reporting/referring to First Steps Education and training Follow-up with children who pass hearing screening but are at high risk of on set delay Program evaluation

Indiana Newborn Hearing Screening Participation Team work Coordination Cooperation