Task Force on Major and Chronic Diseases The Netherlands Institute for Health Services Research Project output related to ECHI Indicator lists December 2006 – May 2007 Task Force on Major and Chronic Diseases

Sources Interim and final reports published in past 6 months Progress reports provided by the projects (May 2007) Task Force on Major and Chronic Diseases

Mental Health Information and Determinants for the European Level (Mindful) Project ended June 06; Final report written Sept. 06, published Jan. 07 Indicator related output: Set of 35 mental health indicators, shortlist of 20 Mindful database ( Recommendations for EHIS: five items for module on health determinants: 1) Sense of mastery, 2) social support, 3) life events, 4) self-esteem, 5) childhood adversities Recommendations for ECHI-2 indicator set Task Force on Major and Chronic Diseases

Analysis of injury mortality in the European Union (ANAMORT) Task Force on Major and Chronic Diseases Interim report, covering Oct – Aug. 2006, published Dec. 06 Aims: evaluate quality & comparability of injury mortality statistics in Europe, produce validated results on causes of death by injury in Europe related to cause specific mortality longlist. Activities so far: survey on death certification (36 countries); started analysis of mortality data

European Union Health Surveys Information Database (EUHSID) Task Force on Major and Chronic Diseases Second interim report, written March 2007, published May 2007 Updating of the Database: –HIS: 38 surveys included for period , 15 new surveys identified for year 2005 –HES: 9 surveys included for period , 9 new surveys identified for years –New reference instruments / guideline for HIS and HES included URL :

European Union Health Surveys Information Database (EUHSID) II Task Force on Major and Chronic Diseases HIS/HES topic codes: Definitions developed; Comparative analysis between ECHI shortlist, EHIS (Core EU health survey) and topic codes HIS/HES Plans for year 2007: Analysis coverage ECHI in health surveys Revision of topic codes Inclusion 2005 surveys + identification 2006 surveys Proposal for continuation of project including pooling and sharing of EHIS individual national data

European Collaboration on Dementia (EuroCoDe) Task Force on Major and Chronic Diseases Interim report (March 2007) Related to Dementia/Alzheimer prevalence (section 2, shortlist): -Development of European guideline on diagnosis (work started) -Compilation of database of all European epidemiological studies (work started)

European Collaboration on Dementia (EuroCoDe) Task Force on Major and Chronic Diseases Interim report (March 2007) Related to Dementia/Alzheimer prevalence (section 2, shortlist): -Development of European guideline on diagnosis (work started) -Compilation of database of all European epidemiological studies (work started)

European Core Indicators in Diabetes Mellitus (EUCID) Task Force on Major and Chronic Diseases Progress report Indicator code book was finalized in January topics covered, a.o. prevalence, incidence, BMI, smoking, amputation Data collection ongoing

A comprehensive HI & K system for evaluating and monitoring perinatal health in Europe (EUROPERISTAT2) Task Force on Major and Chronic Diseases Progress report Completion of data collection on EURO-PERISTAT indicators in the participating 26 countries (instrument was launched at the end of 2006).

Eur. Inf. System to Monitor short and long- term Morbidity to Improve Quality of Care and Patient-Safety for very low birth-weight Infants (EuroNeoStat) Task Force on Major and Chronic Diseases Progress report Comprehensive set of indicators of perinatal morbidity related to very low birth-weight, taking into account ECHI shortlist, PERISTAT, EUROCAT, Cerebral Palsy Register data collection during Pilot Phase (Website under development; indicator list available through project leader)

Health indicators for people with intellectual disabilities: using an indicator set (POMONA II) Task Force on Major and Chronic Diseases Progress report Related to ECHI longlist: intellectual disability, comorbidity: -Pilot study completed: analysis of data on n=84 participants is underway -Sample selection strategy completed -Data collection is underway in 14 participating MS