New England Regional 2015 National Respite 21 April 2015

Agenda 1.Welcome/Update on Previous Actions1:30 2.Respite Policy Update 1:45 3.NDIS Issues2:00 4.CHSP and PWD2:30 5.Carer Support2:45 6.Close 3:00

1.1 National respite Communities of strong relationships that support the lives people choose Support interconnected wellbeing between people with disability, frailty from age, mental illness and their chosen carers, families, and informal supports

Last Meeting Actions 1.National Respite: Transitioning Respite Project update 2.Providing a flexible respite service under NDIS as disconnect: – ADHCs flexible respite packages growth – NDIS ‘reasonable and necessary’ support 3.Funding volunteer and other flexible family supports under NDIS 4.Emergency co-ordination and support under NDIS 5.Trial Site Updates - Transport

Carer Care recipient Respite Care Carer support ? 37 NDISCHSP Integrated Carer Support Programme (DSS) 3.1 Respite and carer support in 3 systems Mental Health

Policy Landscape Update – Respite Disability (NDIS) Significant changes for carers and respite services: 1.NDIA 5 strategic outcomes for carers and families: Families/carers: 1.have the support they need to care 2.know their rights and advocate effectively for the person they are caring for 3.are able to gain access to desired services, programs and activities in their communities 4.have succession plans 5.enjoy health and well-being 2.Respite language to be restored: – currently not listed but respite outcomes are – Recognise ‘the service type that cannot be named.’ 3.Flexible bundling of supports? Further consultation this year on respite in NDIS

Policy Landscape Update – Tier 2 NDIA paper – five streams 1.Information, linkages and referrals 2.Capacity building for mainstream services 3.Community awareness and capacity building 4.Individual capacity building 5.Local area co-ordination Available to all people with disability, including those also receiving Tier 3 HOWEVER: “a significant proportion is likely to receive most, if not all, the supports they need through mainstream systems”

Our ILC Submission 1.Outcomes for people with disability and carers to measure success of streams 2.Outcomes guide purchase and contestability 3.Three ILC streams: 1.Information, linkages and referral – for everyone in the community 2.Community Awareness and Capacity Building - for mainstream services and community 3.Individual Capacity Building - for people with disability and carers 4.ILC target sub populations including carers, linked to clear ILC outcomes 5.Map current service system of Tier 2 6.Preventative disability specific supports in Individual Capacity Building stream 7.Flexible blended formal, informal and volunteer support is named explicitly in Individual Capacity Building stream 8.Advance purchase for volunteer program coordination, training and support 9.Parallel track to carer support through ILC and Integrated Carer Support

NDIS Update – Emergency Co- ordination and Support Emergency Respite NDIA submission: – Clarifying role of Agency in Co-ordinating Emergency Support – Clarifying NDIS process – Data collection We propose: – Transition plan for emergency co-ordination given Integrated Carer Support Programme is not on the same schedule as NDIS and CHSP – NDIA to advance purchase emergency co-ordination and support through established providers for participants – Factsheets and websites updated to communicate NDIA emergency process – Sustainability of participant relationships measured

NDIS – Quality and Safeguarding NDIA paper proposes three domains: 1.Developmental: – Advocacy – building natural safeguards – consumer led initiatives, including through social media 2.Preventative: – Formal individual safeguards eg risk assessments in plan – service level safeguards eg policy and procedures, feedback mechanisms – system level quality measures eg registering with NDIA 3.Corrective: – Universal measures eg ombudsman – Complaints handling – Serious incident reporting BUT Limited discussion of self management and micro businesses

NDIS – Quality and Safeguarding NDS paper proposes: co-regulatory model comprised of an industry regulator and an independent consumer complaints body We propose a framework that: 1.Acknowledges that people with disability can be supported in strong relationships and meaningful community involvement through: - a quality and safeguarding framework that measures success of supports through met outcomes that have been set and assessed by the individual - supporting natural safeguards such as family and friends 2.Empowers people with disabilities through a regulatory and legal quality and safeguarding system that meaningfully puts people first. 3. Caters to a changing disability supports market with attention to the unique needs of those self managing employment of staff and funds and micro businesses Feedback to DSS until 30 April 2015

NDIS: Preparing Families for a Plan Three resources: 1.National Respite project ‘Services Preparing Families’ 2.Parallel Carers NSW project: resources to prepare carers 3.Carers Australia/Mental Health Australia Capacity Building Project

CHSP Respite 1.Future of NRCP funded clients under 65 2.Future of disability specific providers with majority NRCP funding 3.People who both identify as having a disability and are frail from age 4.Non- respite carer support taken out of CHSP 5.Flexible Respite for People with Dementia Project

CHSP Funding Landscape CHSP contracts 1.Small extension to 31 October, then new contract Nov 2015 – Jun NRCP incorporated, & <65 grandfathered Sector Support & Dev 1.Non-output services 1Q16 extension 2.Review of CSIA and non-output services 3.Competitive tender

Carer Support Recently…  CRCC contracts will be extended to 2017  Government developing integrated carer support model  Co-design with carers and service providers  Minister Fifield – carer supports outside NDIS & single carer assessment  Minister Morrison – importance of carers  But issue of different state funding ‘base level of community support’  Concerns  particular client groups – young carers, rural & remote, CALD, Indigenous  loss of expertise, referral pathways

National Respite action Organisation future Priorities: – Transition readiness – Service innovation – Carer support and CRCCs IDF Small & Micros in the bush CHSP - Flexible Respite NDIS – choice and innovation CRCCs – Integrated Carer support Transitioning Respite