Speech and Language Therapists and the Stroke Association Support Co-ordinator working together to provide communication support: an evaluation aphasia.our.dmu.ac.uk.

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Presentation transcript:

Speech and Language Therapists and the Stroke Association Support Co-ordinator working together to provide communication support: an evaluation aphasia.our.dmu.ac.uk People with aphasia creating an aphasia friendly website: The DMU4 experience Bixley,M., DMU4, Hall, R., Weale, R., Collingwood, J., Marshall, F., Hamilton, C. & Bixley, B. Aphasia friendly: -DMU4 aphasia leaflet design used as basis for website design and branding -navigation around the website was based on intuition rather than understanding of written labels Technical Skills: Filming -interviews of nine people with aphasia, on one day, consent was given for filming. Editing -individual interviews and group themes were edited Finding host for website -our DMU commons, a self organising space that allows users to co construct their own website Website design -website was designed using open access software -atypical website design to allow PWA to use the site independently Website maintenance -ongoing - we hope to add animations, further pages and more aphasia narratives Informed consent: -co constructed website project -discussed and agreed principles of consent with members of DMU4 -PWA had repeated opportunities to discuss full implications of electronic consent -one of the two consent forms is held by the PWA and the other by DMU -Watermark on all images asserts joint ownership of copyright An aphasia website: -with videos of people talking about aphasia -to be used by people who want to learn more about aphasia Pre filming meetings -to discuss content -to write prompts and scripts for filming Filming and editing -individual interviews were transcribed and people with aphasia (PWA) were given copies of DVDs and transcripts -Interview excerpts were sorted into eleven themes using a grounded approach -The group met to agree the order and focus of group themes Website meetings -agreed each stage of website construction -usability testing ensured PWA and others could use the website Creation of an aphasia friendly website – an academic exercise? One other aphasia website designed by PWA Moss, B., Parr, S., Byng, S. & Petheram, B. (2004) Pick me up and not a down, down, up up”: how are the identities of people with aphasia represented in aphasia, stroke and disability websites? Disability & Society, 19, 7, % of British social services do not provide accessible information for PWA CARE QUALITY COMMISSION (2011) Supporting life after stroke: A review of services for people who have had a stroke and their carers. London: Care Quality Commission. Website designed to overcome informational barriers experienced by PWA POUND, C., PARR, S., LINDSAY, J. & WOOLF, C. (2000) Beyond Aphasia: Therapies for Living with Communication Disability. Bicester: Winslow. Strategies that helped aphasia friendly website design were informed by the evidence base DALEMANS, R. (2009) Facilitating the participation of people with aphasia in research: A description of strategies. Clinical Rehabilitation, 23, 2,