Spinal Cord Correction Surgery A Success of International Cooperation From International Collaboration Rotary IT Corridor, Club Number District 3190

Deformity Scoliosis ( Greek word Skoliosis =crookedness), Sideward curvature of spine Kyphosis - Forward bending of spine

Causes Congenital – By birth Idiopathic – unknown causes – usually in adolescent age group Neuromuscular – secondary to polio or cerebral palsy Others – Tuberculosis (T.B.), trauma (common cause in India )

Scoliosis patient Early stage – Experiences pain at early stages (school days) – Deformity creates inferiority complex among peer circles – Child withdraws from activities, even drops out of school Progressive Stages – Back pain severity increases – Gait changes due to abnormal shoulder and hip levels – Adaptation to very low physical activities and also underperformance in academics Advanced – Grotesque deformities =physical disabilities – Respiratory (breathing) problems due to reduced chest capacity – Malnourishment due to digestive problems and reduced intake – Neurologic problems – weakness in legs, loss of bowel and bladder control Unfortunately 90% patients come to treatment at Advanced stage for treatment

Scoliosis as a problem Average incidence of 1 to 1.6% No central registry exists in India Majority accepts the disability and starts living compromised life style due to lack of proper knowledge and facilities for treatment Early diagnosis and treatment are the key Early correction reduces the cost and limits the disability Early correction allows patient to lead productive life. Lack of expertise and general awareness about deformities compounding the problem Very few have expertise to deal with such problems

Beneficiary End to end Collaboration French design Company gave implants at 40% discount NGO connection Long Expertise in Healthcare and rehabilitation and post operative social support Free ConsumableFree SurgerysupportFree hospitalservices Rotary Expertise in International Collaboration Fund Generation Identifying the Right beneficiary Cotrel and Dubosset Designers of CD system

Progress – Two Operations Done 1.Mr. Mohan, 22years old/male, diagnosis to have congenital lumbar scoliosis with hemivertebra. He has studied SSLC (10 th ) and was working in a shop. He developed gradual onset of back pain and worsened in the recent months and was unable to do his routine activities. He was tilting and losing balance. The correction surgery will help him in regaining the balance and he will be back to work as store assistant. He is a Native of Tumkur, earning monthly Rs.2000/- (USD 40/ month). 2.Satyanarayana, aged 22years, is born with multiple deficiencies. He cannot hear and speak. He has deformed chest cavity adding to this he has severe scoliosis which is causing imbalance. His IQ was assessed and after confirming that he can be rehabilitated to a functionally independent person, correction of scoliosis is undertaken. Clinically his curve has been corrected and doing well post operatively. His father a poor farmer cannot afford treatment for any of his ailments.

It all Started At – French National Night French Consul General and DG Lighting the lamp and starting a partnership French Consul General addresses Rotarians and French Nationals, and confirms support to Rotary projects and Indo-French-Rotary Collaboration A MoU is signed between Manipal Hospital, Sukriya and Rotary for 25 Spinal Cord Surgeries Presidents from other clubs supported the initiatives An Initiative is born leading the changing lives of 25 people with spinal cord deformities.

Scoliosis – treatment hurdles Majority of advanced deformity patients are poor Cost of the treatment very high – 8 -10,000 US $ Very high cost of implants –US$ 4000 on an average Done only in multi specialty Hospital Very few trained surgeons Brought down cost to USD 3K, beneficiary pays only USD 1 K (That also covered by NGO at times), that is 1/10 th of original cost. Manipal brought doctors and multi specialty care facilities on table. Sukriya brought expertise in post operation care and rehabilitation on table. Hurdles Overcome/Lowered

Our aim To offer highest quality treatment for 25 patients from underprivileged socio-economic background Cost effective approach Rehabilitation of the treated patients – Edcuation & employment “ Moral, social & ethical responsibility”

Support Needed Matching Grant Projects, 2 K USD, will change one life 25 Operations is just a number we will do as many possible if we get the grant.

Thank You