Myths & Facts about TBI in Oregon Students

Content  Myths & Facts  Brief overview of supports for students with TBI across Oregon  Q & A

Myth #1 There aren’t that many children with TBI

Fact TBI is the leading cause of disability and death among children and young adults in the United States.

Incidence of Brain Injury: National Data  Each year an average of 626,000 TBIs occur among children:  62,000 children are hospitalized  564,000 children are seen in emergency departments CDC (2007)

TBI in the United States TBI by Age Group* * Average annual rates, CDC Blue Book 2006

TBI in the United States TBIs Among Children (0-14 years) by Cause Average annual percents, ; ED visits, hospitalizations, and deaths combined (CDC Blue Book 2006)

Causes of TBI in Oregon

Myth #2 Because children are in school they receive appropriate services.

Fact Special education is the ticket to rehabilitation in school.

Facts But: We don’t currently have an accurate number of how many children with TBI have persisting disability… …and should be receiving special education

National Issue

National Statistics/100,000  180/100,000 infants, children and adolescents are hospitalized for TBI annually Krause, 1995

Under-identification for Special Education  Annually: 62,000 children hospitalized for TBI  (CDC)  16% need special education supports  (Zaloshnja, 2008)  Cumulative total (K-12): 119,040  Very conservative estimate!  Total on federal Sped. census (2005): 23,509  (ideadata.org)

Under-identification for Special Education

TBI in Oregon Special Education  566,067 school children in Oregon  At the 180/100,000 hospitalization rate…  1,018 Oregon students hospitalized for TBI annually  If 16% of the 1,018 kids hospitalized for TBI (163) need special education… (2009 )

Epidemiological Estimates: Oregon SPED  Conservative K-12 cumulative estimate…  1,955 students in Oregon  ½ or 977 aged  TBI identified on Oregon SPED census (2009): 294

TBI Under-Identification Cycle Under- identification Lack of Awareness Apparent Low Incidence Lack of Training Lack of Research Money Lack of right services for Kids who are ID’d

Insider Perspective “As educators, we don’t have a handle on this disability”

What’s Happening to Students with TBI?

SUPPORTS IN OREGON FOR STUDENTS WITH TBI

Model of Service Delivery for Oregon Students with TBI HospitalFamilySchool Outside Agency TRI School Team (Including parent) General Ed IEP 3-yr Re-Eval 504 Plan School Contact Regional TBI Liaison TBI Coach TBI Coach provides ongoing support as requested and does not carry a caseload TRI O State-wide leadership O Ongoing capacity building O Support evidence- based practices and materials O Educational opportunities open to educators in Oregon O Library services O Referral for parents seeking help O Central point of contact for regional medical centers O Centralized data collection O Build awareness of needs & services for students with TBI

Oregon Department of Education Regional Programs for Low Incidence Disabilities State-wide Leadership Grant (Teaching Research-Eugene) 1 Liaison per region at.5 FTE TBI Coaches 1.0 FTE/region minimum Building capacity for school teams serving students with TBI Coaching teams/staff in schools for students who have TBI Provide state-wide leadership for TBI Liaisons & Coaches, Team Providing leadership for TBI with Districts, Staff, SPED Directors,& 504 coordinators Collect data for continuous program improvement Support evidence-based capacity building at state, regional and district levels Providing educational opportunities open to educators in Oregon Offering evidence-based materials to assist in building capacity Ongoing capacity building for TBI liaisons, coaches & districts Offering materials and referral for parents seeking help Serve as a central point of contact for regional medical centers Serving as a centralized data collection point Building awareness of needs & services for students with TBI Assisting districts to identify need and build regional capacity Receive information & Referring students to TBI Coaches Providing library services for evidence- based interventions

TBI Team Model: Impact Data collected from 7 of 9 Liaisons Liaisons9 Active Team Members50 Presentations on TBI43 Attendees at presentations 734 Mean satisfaction rating3.65 (4 pt scale) Students coached156 Student contacts made486 Avg. contacts per student 3.1

What is being done in Oregon?  Regional Brochures  TBI Tidbits  Awareness building  Presentations  Intensive team interventions  Website inter-connectivity

TBI Team Members  Give guidance during re-entry to school following TBI  Assist with support ideas  Offer assistance with SPED Process  Offer help with programming  Ongoing needs of students as needed  Mostly based within the district

Regional TBI Liaisons  Offer support within region to TBI Team members (who support teachers, who support students)  Work with districts to build capacity  Work with TBI Team to meet the needs of students

TBI Regional Liaisons RegionName Work Phone 1Lon Thornburg Sue Hayes Vicki Bernard NorthBetty Capt SouthBrenda Rioux Pam Carey Penny Jordan Wendy Friedman Laura Bekken TR- Eugene Pat Sublette

Teaching Research-Eugene  Named PABI National Center in 2008  Researching methods to meet the needs of students with TBI for >20 years  Mentors Regional Liaisons  Facilitates statewide TBI team  Approx 90 team members across the state  Training and technical assistance for schools  Website  Monthly newsletter ( delivery)

What is Available Now to Support Districts?  Liaison FTE in Regions  Statewide Seminars  Face to face  Webinars  TBI Team Members  Follow-up coaching for team members who attend statewide training

Available to Support Districts  Website for TBI and SPED in Oregon   OBIRN- EB Resources  Laura Beck, research librarian  Phone: 

Online Resources  TBI Educator  Website devoted to serving students with TBI in Oregon  Learnet learnet /index.html learnet /index.html  Examples of teaching strategies, tutorials etc  Brain line www. brainline.orgwww. brainline.org

Library Resources OBIRN Oregon Brain Injury Resource Network – Laura Beck, research librarian – Phone: – – Laura Beck is a librarian with 10 years of experience researching issues related to TBI. She is available for personalized information service to parents, educators, and others who work with students with TBI.