Development of the Partnerships in Dementia Care (PiDC) Alliance Carrie McAiney, Sherry Dupuis, Karen Ray, Amy Go, and the Partnerships in Dementia Care (PiDC) Alliance Sunday March 27, 2011 Alzheimer Disease International Conference

Growing Concerns about LTC Culture Hierarchical organisational structure Predominance of acute, medical model of care Unidirectional, provider-as-expert approaches Program-centred rather than person-centred Reliance on outcome measures irrelevant to effective care decisions Exclusion of those directly involved in care and support in decision-making (i.e., persons with dementia, family members, front-line staff)

Calls for Culture Change Reflective of…. Strong bi-directional relationships at the core and a focus on relationship-building Direct, active and meaningful involvement in planning and decision-making by all Empowering, humanistic approaches to care that are person-centred rather than program centred Processes that enhance capacity building for all

Moving the Agenda Forward… Ontario Alzheimer Strategy ( ) Alzheimer Strategy Transition Project ( ) ADRD Planning Framework and Tool-kit introduced (2006) Requests from LTC organisations to put framework into practice MAREP implementing and examining different partnership approaches in practice ( )  A Changing Melody  By Us For Us Project  Dementia Diagnosis Resource Kit Project 2008 introduced authentic partnership model 2010 Received SSHRC CURA grant

Guiding Theoretical Frameworks Alzheimer’s Disease and Related Dementias (ADRD) Planning Framework Relationship-Centred Care and Authentic Partnership Approaches Appreciative Inquiry Participatory Action Knowledge Translation (PAKT) Model

Overall Goal To facilitate sustainable LTC culture change reflective of a relationship- centred/partnership approach in order to enhance the care experience for persons living with ADRD, their family care partners, and staff working in dementia care

Our Focus is…. An Informed Society Enabling & Supportive Environments Personal, Social & System Connectedness We appreciate & work to... Discover ‘the best of what is’ Dream ‘what might be’ Design ‘what should be’ Deliver ‘what will be’ To guide our process we…  Make decisions together  Create a liveable space where all can thrive  Value and integrate our collective abilities & gifts  Respect the welfare of others  Are accountable  Focus on the process In partnership, we strive to…  Enhance the care experience for persons with dementia, family members & staff  Appreciate & build on our strengths to build capacity Guiding Principles Culture Change Process Culture Change Outcomes Connect & commit to each other Value diverse perspectives Establish & maintain open communication Create a safe space Conduct regular reflection & dialogue

Culture Change Coalitions Knowledge Broker and Knowledge Mobilization Team Culture Change Learnings, Tools & Resources Research Management Team Partners of the PiDC Alliance PiDC Governance Structure

For more information contact: Sherry L. Dupuis, Ph.D. Murray Alzheimer Research and Education Program (MAREP) University of Waterloo or Carrie McAiney, Ph.D. Dept. of Psychiatry & Behavioural Neurosciences McMaster University