Resources for Caregivers of Persons with Dementia & Intellectual Disabilities ADSSP Call February 14, 2013.

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Presentation transcript:

Resources for Caregivers of Persons with Dementia & Intellectual Disabilities ADSSP Call February 14, 2013

National Alzheimer’s Contact Center Call Staffed 24/7 Information also available on-line, via , message boards, etc.

Alzheimer’s Disease Education and Referral (ADEAR) Center National Institute on Aging NIA’s Alzheimer’s Disease Education and Referral (ADEAR) Center Mon-Fri, 8:30 am-5:00 pm Eastern Time Focus on research-based information Referral to government and organization resources

Alzheimer’s Disease Education and Referral (ADEAR) Center National Institute on Aging According to NIH, “Today, at least 50,000 volunteers, both with and without Alzheimer’s, are urgently needed to participate in more than 175 actively enrolling clinical trials and studies in the United States. To reach that goal, researchers will need to screen at least half a million potential volunteers.”

Alzheimer’s Disease Education and Referral (ADEAR) Center National Institute on Aging disease-research-centers#adcs NIA-funded Alzheimer’s Disease Centers (ADCs): ADCs conduct research to improve diagnosis and care and test treatments Help with obtaining diagnosis and medical management Opportunities to participate in research

Alzheimer’s Disease Education and Referral (ADEAR) Center National Institute on Aging clinical-trials clinical-trials NIA ADEAR Search for Alzheimer’s Clinical Trials Find trials by: Location Eligibility criteria Drugs tested Featured trials ADEAR phone support Sign up to receive e-alerts, RSS when new trials posted/updated

9 Web Address: Phone:

10 x.aspxhttp:// x.aspx, includes the following: Information on ADSSP Links to prior webinars on various dementia-related topics Stay tuned for upcoming 2013 ACL/NIH webinar series which will include a session on dementia & intellectual disabilities AoA Alzheimer’s Page

11 Amy Wiatr-Rodriguez, MSW U.S. Department of Health and Human Services, Administration for Community Living, Chicago, IL Phone: (312) 938 – 9858 Fax: (312) 886 – Web: Questions?