2010 CMD Family Conference Live CMD Learn CMD Connect CMD.

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Presentation transcript:

2010 CMD Family Conference Live CMD Learn CMD Connect CMD

Cure CMD All volunteer organization with primary focus on moving the CMD agenda on multiple fronts: Identifying targets Raising awareness Registering the global population Establishing scientific resources Funding research looking at treatment targets Making CMD clinical trials do-able and a realistic goal

Cure CMD Volunteers Cure CMD Board Cure CMD Scientific and Medical Advisory Board: Carsten Bonnemann, Francesco Muntoni, John Porter, Markus Ruegg, Alexandre Mejat, Edward Kaye, Petra Kaufmann Project Support And Advocacy Lead: Susan Sklaroff- Van Hook, Diane Smith- Hoban, Ann Cloud, Jackie Nelson 2010 CMD Family Conference Support: Susan Sklaroff-Van Hook, Diane Smith Hoban, Mike Newton, Terri Clausen, Mari Schindele, Linda Gowarty, Alan Tuttle Administrative and Communications/IT Becky May, Meera Gandhi, Rachel Alvarez, Joey Bower Grant Team: Charlene York, Sandee Lefcoe, Erin McGuirk, Michael Davis CMDIR Advisory Board: Jiri Vajsar, Madhuri Hegde, Vanessa Rangel Miller, Jan Kirschner, Susana Quijano-Roy, Susan Sparks

Cure CMD Collaborators and Sponsors International CMD Community families, clinicians, allied health professionals, scientists, advocacy, pharmaceutical industry and federal agencies

Our Principal Sponsor

Gold Sponsors

Associate Sponsors

Hospitality Sponsors

Conference Logistics Dr. Kurt Fischbeck Dr. Russ Butterfield Sign ups: CMD BioBank blood CMD BioBank skin biopsies Pulmonary video: general advice CMD Advocacy