KHWAN DR.SHAN NARAYANAN CONSULTANT PAEDIATRICIAN INDIVIDUAL WITH FACTOR XIII DEFICIENCY MALAYSIA

AWAKENING

PENGUIN TRIP

REALISATION Bleeding disorder in women is a significant issue The impact on them was equally significant Vulnerable group as they don’t usually/easily talk about their issues

TAKE HOME MESSAGE We need a support group for women with bleeding disorder in Malaysia HOW WILL IT BE DONE? Dr.Jameela Sathar Consultant Haematologist Hospital Ampang, Selangor Malaysia

STAGE 1 INTRODUCTION & GET TOGETHER 25 SEPTEMBER 2014 Dr. Jameela takes the idea to a higher level

STAGE 2 NNHF FUNDING APPLICATION IS DONE BY DR.JAMEELA DESPITE A TIGHT SCHEDULE. NNHF VERY STRINGENT IN THEIR REQUIREMENTS, THE PROPOSAL IS REVISED ON 2 OCCASIONS

STAGE 3 INVITATION FOR GUIDANCE

STAGE 4 DEVELOPING A WOMEN’S LEADERSHIP ORGANISATION FOR WOMEN WITH BLEEDING DISORDERS

Stage 5 VISION : TO UPLIFIT HEALTH OF WOMEN

STAGE 5 MISSION : TO ENSURE ADEQUATE MEDICAL AND PSYCHOSOCIAL SUPPORT FOR WOMEN WITH HAEMOSTATIC DISORDERS

STAGE 5 OBJECTIVES 1.Creating awareness of bleeding and clotting disorders in women. 2. Early diagnosis and treatment of women affected by bleeding and clotting disorders 3. To provide psycosocial support for women affected by bleeding and clotting disorders 4. To empower women with bleeding and clotting disorder to advocate for adequate healthcare.

Stage 6 LINKING KHWAN WITH HSM

STAGE 7 IMPLEMENTATION IN PHASES CREATING AWARENESS AMONG CLINICIAN AND PATIENTS IDENTIFYING WOMEN LEADERS TRAINING OF WOMEN LEADERS PREPARING GUIDE FOR WOMEN LEADERS WORKING WITH OTHER WOMEN SUPPORT GROUPS

STAGE 7 IMPLEMENTATION IN PHASES HOPE TO GET NNHF FUNDING. WE WILL BE LAUNCHING THE WOMEN’S GROUP PROJECT IN KOTA KINABALU, SABAH ON 26 APRIL 2015

THANK YOU