©2014 Leadership Council Presentation 1 Fall 2014 Update

Collaboration Goals 5 shared goals with a Health Equity perspective 2

Health Equity Leadership Group Guiding principles, practices, and call to action for all ACT participants Embed equity in ACT tools, resources, and communications 3

Goal: Identify and Invest in Promising Approaches In-person caregiver support intervention modeling reflected in Health Affairs and subsequent Net Savings analysis Initial modeling: potential savings Net Savings completed 4 Identify/Invest

Goal: Increase Detection and Improve Care Develop and disseminate Provider Practice Tools and curriculum that support providers in assessing, diagnosis, treating and managing dementia 5 Detection/Care

Provider Practice Tools 6 Tools for multiple audiences, including: Full disease spectrum EMR decision support Care coordination 2015 focus : Implementation Health leadership summit

Dementia Curriculum Interdisciplinary dementia curriculum that embeds practice tools Curriculum will be foundation of national uniform dementia curriculum 7

Goal: Sustain Caregivers 8 Caregiver focus within: After a Diagnosis resource Provider practice tools (assessment and support) Dementia is Everyone’s Business (working caregivers) Sustain Caregivers

Goal: Equip Communities and Raise Awareness Develop a Community Toolkit to foster dementia-friendly communities Support community implementation of the Toolkit 9 Equip Communities

Dementia-Friendly Community All sectors are informed, safe and respectful and foster quality of life 10

Sector-Specific Support Resources Dementia-friendly action steps for: Businesses Community-based supports Faith communities Health care community Legal and financial services Local government Residential settings 11

12 1.Convene key community leaders and members to form an Action Team. 2.Assess current strengths and gaps within the community. 3.Analyze findings to understand your community’s needs and develop a plan to take action. 4.ACT Together to pursue priority goals that foster community readiness for dementia. Cross-Sector Collaboration Support

Communities ACTing on Alzheimer’s 32 Action Communities Technical assistance from AAAs and Alzheimer’s Association 13

Action Communities Happenings Creating dementia- friendly businesses Training Dementia Friends Training health care providers on ACT tools Training local emergency responders Creating memory cafés Educating to increase awareness Developing Rabbi training Hosting a caregiver conference Training teens within the Jewish community Training local government employees 14

Learnings: Collaborative No one owner Consistent project support, coordination and communications Collective impact structure Transparency and inclusiveness Diverse participants and funders Reporting progress 15

Learnings: Early Adopters Survey Increase detection and improve care Survey questions about ACT tools and resources showed: – Significant interest and participation in developing the tools – Limited understanding of their impact Work ahead: Tool adoption; track/communicate impact Invest in promising approaches Economic model for caregiver intervention noted as important work; survey timing impacted feedback Work ahead: Policy for caregiver supports and other modeling 16

Learnings: Early Adopters Survey Sustain caregivers Survey responses reinforced the conscious effort to infuse caregiver support in all aspects of the work Work ahead: Action communities share/provide resources Raise awareness and equip communities Survey participants believe the fostering of Alzheimer’s awareness and its impact on communities is seeing results and making a difference for Minnesota Work ahead: Action communities as models 17

Sharing ACT Nationally National Alzheimer’s Project Act Advisory Council (April 2014) Scottish Institutes Knowledge Exchange (June 2014) Dementia Action Alliance (June 2014) Administration for Community Living Webinar (August 2014) WA2 Conference (September 2014) HCBS Waiver Conference (September 2014) AARP/Global CEO Initiative/Internat’l (Oct. 2014) 18

Sharing ACT Nationally Curriculum Use ACT on Alzheimer’s as foundation for uniform national portal for dementia-friendly communities o Centralized and maintained at national level o Technical assistance and implementation at state and local level 19

Work In and Beyond 2015 Practice tool adoption/implementation Dementia-friendly communities support Dementia-related policy advocacy (e.g., caregiver support) National replication that helps sustain Minnesota’s work 20

Post-2015 ACT Steering Team considered various scenarios Recommend hybrid scenario Reduced/shared infrastructure Focus on tool implementation and community work 21

Leadership Council Discussion Does the proposal warrant an ACT 2.0 and, if so, how will we organize to support it? If not, should we consider supporting a limited “glue” function (e.g., staff person under an existing organization)? Immediate next steps if any? 22

Health Equity Courageous Conversation History and courageous conversation of health equity leadership group MDH health equity and elder rights parallel tracks Clarity around identity and purpose 23

ACT on Alzheimer’s is a critical vehicle for fostering health equity Racial and ethnic minorities are at greater risk for developing Alzheimer's disease Members of minority ethno-racial groups often receive delayed diagnosis or inadequate treatment Protective defenses against and risk factors for dementia flow directly from societal inequities that disproportionately impact minority ethno-racial groups Health inequities are exacerbated by structural racism; they are avoidable, unjust and ACTIONABLE… so let’s ACT 24

Health Equity—doing differently to achieve the same Findings of Institute of Medicine (IOM) Crossing the Quality Chasm and Unequal Treatment reports: Cultural competence Person-centeredness improve quality and eliminate racial/ethnic health care disparities 25

Health Equity LG Initiatives Establish and implement health equity guiding principles, practices and call to action for ACT and its participant organizations Embed health equity lens into all ACT provider practice and community tools and communications 27

Health Equity Discussion What responses do you have to the call to action? What opportunities do you see to adopt/embed the Health Equity principles and practices within your own organizations? Next steps? 28

Next Steps Further comments or discussion? Glen Campbell Documentary Screening Thanks! 29