Summit on AT Reuse and Emergency Management for FEMA Region III Sept. 26 and 27, 2011 Philadelphia Successful Strategies Innovative Partnerships Futures Planning

Welcome, Overview and Expectations Carolyn Phillips, Project Director, Pass It On Center (PIOC) Amy Goldman, Manager, PIOC Initiative on AT Reuse and Emergency Management and Director, Pennsylvania’s Initiative on Assistive Technology Beth Mineo, Director, Center for Disabilities Studies, University of Delaware Carl T. Cameron, President and CEO, Inclusion Research Institute/Inclusive Preparedness Institute 2 1:00 – 1:30 p.m.

3 FEMA Region III: Virginia District of Columbia West Virginia Maryland Delaware Pennsylvania Meet the Delegates: Introductions

Brief Introductions Your name and state Your role with/interest in emergency management, people with disabilities, assistive technology (AT) and AT reuse Why you are pleased to participate in this Summit! 4 1:00 – 1:30 p.m.

Our Summit Goals To define role of AT reuse in disaster planning To identify needs for rapid response system for delivering AT devices after disaster To develop sustainable networks to meet AT needs in emergency management To begin at state level to develop plans 5

We’ll learn more about :  Assistive technology reutilization  Pass It On Center  AT reuse programs You can find a reuse program near you in the Locations Database at

Assistive Technology (AT) and AT Reuse Carolyn Phillips 1:30 – 2:15 p.m.

Pass It On Center -Promotes the safe, effective and appropriate reuse of lightly-used assistive technology -Provides technical assistance to organizations engaging in AT reutilization -Is funded by the U.S. Dept. of Education/ Rehabilitation Services Administration and administered through the Georgia Department of Labor’s Tools for Life Program

Reauthorization of the Assistive Technology Act New Freedom Initiative Interest from OSERS’ leadership Hurricane Katrina Born of ‘the perfect storm’

AT reuse serves America’s largest minority: People with functional needs One of every five Americans has some form of disAbility. It cuts across age, gender, race, ethnicity and religion. Any person may join this group at any time. Assistive technology makes it possible for us to live, learn and earn. AT reuse helps the uninsured, under- insured and those with coverage who experience delays in getting devices.  AT Reuse Customers/STAR, Alabama’s Assistive Technology Resource

AT reuse takes several forms: Exchange between seller or donor and buyer or recipient Refurbishment of devices for minor repairs to restore original function Reassignment to new users Device loans for trial or to fill the gap while waiting for a new device Recycling: breakdown for parts or end-of-life disposal Remanufacturing: Please don’t!

How we got here: First national conference on AT Reuse – May 2006 OSERS made grants to 12 three-year “demonstration” projects for AT reuse and to a technical assistance center (the Pass It On Center). There were only three identified reports on reuse projects, although we knew a lot more was being done.

We needed to: Increase access to and acquisition of assistive technology – Get AT to those who need it Ensure that clean, safe, appropriate AT was matched to the needs of customers Gain an understanding of what success is for AT Reuse Programs Develop Quality Indicators for AT Reuse Programs Develop methodologies for measuring outcomes of AT Reuse and Return on Investment (ROI) 13

Collaboration gets results Work groups, the National Task Force and individual programs contributed to the definition of promising practices. By sharing we created an online Knowledge Base that continues to grow. We developed Indicators of Quality for AT Reuse and created an Online Program Assessment Tool. We developed outcomes measurement and methodologies for measuring ROI. 14

Progress in three years 15 As of September 9, 2009, the number of states and programs listed (voluntary profiles) in the Reuse Locations Database had increased to 174. Of these: – 116 conduct reassignment activities – 87 conduct refurbishment activities – 44 conduct equipment exchange activities – 60 conduct reassignment and refurbishment – 18 conduct reassignment and exchange activities – 15 conduct refurbishment and exchange activities – 12 conduct reassignment, refurbishment and exchange

Reuse locations in 2011: 16 As of April 2011, the number of states and programs listed had increased to 174 (from 162 a year ago). Of these: – 116 conduct reassignment activities – 98 conduct refurbishment activities – 53 conduct equipment exchange activities – 58 conduct reassignment and refurbishment – 21 conduct reassignment and exchange activities – 17 conduct refurbishment and exchange activities – 12 conduct reassignment, refurbishment and exchange

17 State AT Act Programs Fiscal Year 2010 Reutilization Data

18 Types of AT Reuse Device Exchange – Want-Ad Digest/e-Bay for AT Device Reassignment/Refurbish – Devices accepted (usually by donation) into an inventory; are repaired, sanitized, and/or refurbished as needed; and then offered for sale, loan, rental, or give away to consumers as recycled products. – Includes devices repaired for an individual (without the ownership of the device changing hands) Open-Ended Loan – Borrower of a device can keep the device as long as needed

19 Type of Activities in State Programs Device Exchange Data – 36 State AT Programs Reported – Refurbish/Reassignment Data – 44 State AT Programs Reported Open-Ended Loan Data – 33 State AT Programs Reported Multiple Programs Reported by Most States 20 AT Programs reported all three – Exchange, Refurbish and Open-Ended Loan; 19 programs reported 2 of 3 Four reported Exchange only, 11 reported Refurbish/Reassign only, and two reported Open-Ended Loan only

AT reuse in all state programs 20 In 2010, all 56 states and territories reported reuse activities in their AT Act Programs: ActivityStates & Terr. Total # Devices Savings to Consumers Exchange361,331$ 2,836,996 Refurbish/repair4428,38913,355,432 Device loan336,1241,795,678 TOTAL5635,844 $ 17,978,046

21 Environment for Device Use Education 9.71% Employment 3.84% Community Living 86.45%

22 Customer Satisfaction Highly Satisfied 85.56% Satisfied 14.03% Satisfied Somewhat.33% Not at all Satisfied.08%

AT reuse and emergency response With Emergency Response as part of the impetus for OSERS’ support of reuse, PIOC created a special initiative. In March 2010, first national summit on AT Reuse and Emergency Management was held in DC In April 2011, FEMA Region IV Summit was held in Atlanta Visit for summary materials and information from those eventswww.passitoncenter.org 23

Roles in Disaster Preparedness for Individuals with Disabilities and Organizations Carl Cameron, President and CEO and Pat Heineman, Project Coordinator Inclusion Research Institute/ Inclusive Preparedness Center 2:15 – 3:00 p.m.

Refreshment Break 3:00 – 3:15 p.m.

Disasters: Sharing Experiences Moderator – Barclay Shepard, AT Specialist, Virginia Assistive Technology System (VATS) 3:15 – 4:00 p.m.

Earthquake – in Region III? 27 August 23, 2011 at 1:51 p.m. 5.8 magnitude in the Central Virginia Seismic Zone Damages Washington Monument and National Cathedral Lessons learned:  It can happen here.  Few people knew proper safety or evacuation strategies. Nuclear power plant shut down

We kept our sense of humor and the wind 28 Through the shaking

The next week – Hurricane Irene Storm rakes East Coast from Carolina to Massachusetts, damaging beaches, destroying homes, flooding areas already wet from heavy rains 29

And then came Lee Just a tropical storm bringing torrential rains, causing widespread river flooding, power outages, and road closings 30

How did these natural disasters affect people with disabilities and users of assistive technology? Share your experiences with these or other emergencies. 31

Planning for the Whole Community Keynote Speaker – Marcie Roth Director, Office of Disability Integration and Coordination and Senior Advisor, Disability Issues, U.S. Dept. of Homeland Security/Federal Emergency Management Agency 4:00 – 5:00 p.m.

Wrap, Tomorrow’s Agenda, Food for Thought Moderator – Carolyn Phillips See your list of nearby and recommended restaurants, or meet in the Lobby at 6:30 for dinner in Chinatown. Have a great evening! 5:00 – 5:15 p.m.

Tuesday, Sept. 27 Continental Breakfast 7:30 – 8:00 a.m.

Preparation for More Effective Response Using Personal Experiences (and Those Shared by Panelists) to Identify Needs, Opportunities, Issues and Potential Partnerships 8:00 – 9:00 a.m.

Preparation Who are the vulnerable populations? What are the likely disasters? What’s the state of public awareness? What’s being done about individual preparedness? What forms of communication will be used? Is your organization prepared to help? 36

Response Does your organization have a staffing plan for emergencies? A leadership succession plan? What provisions have been made to operate AT – possibly in shelters? Do you have agreements in place for AT or services? Have the logistics been worked out to receive, distribute and track AT? 37

Recovery What will happen to excess AT or supplies donated for the emergency? How will AT that is no longer needed be recovered for use by people who do need it? Do you have policies in place about “ownership” of equipment (e.g. transitioning out of shelters into other housing)? 38

Mitigation What have you learned from recent emergencies? What worked? What didn’t work? What needs improvement? Do you have a formal after action review (AAR) process? Do you have a plan to use the lessons learned to be better prepared next time? 39

Preparation (green) Facilitator: Phyllis Guinivan, Recorder: Gary Mears Reporter? Response (red) Facilitator: Carl Cameron Recorder: Chander Jayaraman Reporter? Check your name badge for your break-out session assignment – unless you have a very strong preference for a different one! 8:00 – 9:00 a.m. Recovery (yellow) Facilitator: Barclay Shepard, Recorder: Alicia Johns Reporter? Mitigation (black) Facilitator: Pat Heineman, Recorder: Sonja Rathel Reporter? LOOK FOR THE LOCATION POINTED OUT BY THE MODERATOR

Opportunities and Issues in EM and AT Reuse Reports from the Breakout Sessions 9:00 – 9:45 a.m.

MOUs, Compacts and Other Agreements Jamie Landry Karam, Project Director The AT Marketplace and Computer ReUse Louisiana Assistive Technology Access Network (LATAN) 9:45 – 10:30 a.m.

Refreshment Break 10:30 – 10:45 a.m.

Is Your Agency Ready to Help? Carl Cameron and Pat Heineman Inclusion Research Institute/ Inclusive Preparedness Center Using the Disaster Readiness Template 10:45 – Noon

Lunch Please be our guest for lunch. Noon – 1:15 p.m.

State Planning 1:15 – 2:45 p.m. State Delaware District of Columbia Maryland Pennsylvania Virginia West Virginia Join your delegation in the designated area.

Refreshment Break 2:45 – 3:00 p.m.

State Planning, continued 3:00 – 3:45 p.m.

Debriefing: State Planning Carolyn Phillips 3:45 – 4:30 p.m.

Now this is not the end. It is not even the beginning of the end. But it is, perhaps, the end of the beginning. -Winston Churchill (with thanks to Craig Fugate) 3:45 – 4:30 p.m.

Wrap Up: Next Steps and Meeting Evaluation Carolyn Phillips 4:30 – 4:45 p.m.

52 SHARE YOUR EXPERIENCE TO BENEFIT OTHERS Knowledge Base Donate your plan for an example. EM Blog Write about the planning process Share emergency experiences Discuss issues Share your resources and your experiences to assist your colleagues. Use the PIOC website.

Evaluate the Summit, Please Please complete the brief evaluation form in your package and leave on the back table. If you have additional comments or suggestions, please contact us:

Adjourn Thank you so much for attending and have a safe trip home. If you are staying in Philadelphia tonight, please join us at 6:45 at Maggiano’s, 12 th and Filbert (meet in the Hampton Lobby at 6:30)

Contact us: DISCLAIMER This work is supported under five-year cooperative agreement #H235V awarded by the U.S. Department of Education, Office of Special Education and Rehabilitative Services, and is administered by the Pass It On Center of the Georgia Department of Labor – Tools for Life. However, the contents of this publication do not necessarily represent the policy or opinions of the U.S. Department of Education, or the Georgia Department of Labor, and the reader should not assume endorsement of this document by the Federal government or the Georgia Department of Labor.