Jacob B Weiss, PhD 4/24/2009 CanConnect.org Department of Biomedical Informatics, Vanderbilt University.

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Presentation transcript:

Jacob B Weiss, PhD 4/24/2009 CanConnect.org Department of Biomedical Informatics, Vanderbilt University

Catch It Early

Themes from Summit Day 1 Collaboration Community-based participatory research Cancer survivorship Awareness of community resources Emerging Web Technologies?

Cancer as a Chronic Illness Diagnosis Treatment Survivorship

Community-Based Support Inpatient Clinic Team Outpatient Community Support

Clinical Care Team Clinical Care Team Patients and Families Local Community Support Institute of Medicine (IOM). Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs. Washington, DC: The National Academies Press, 2007 Gustafson DH, Hawkins RP, et al. CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved. International Journal of Medical Informatics. 2002;65(3):

Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Local cancer-related calendar & news blog Local resource listings (tagged by keywords) Design of the Online Community

Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Patient-to-patient mentorship connection Social networking profiles Design of the Online Community

Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Private community partner forum Design of the Online Community

Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Stories shared emphasize life lessons and humor Focus on community support resources and partners Design of the Online Community

Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Google map to visualize support organizations Searchable archive of local events, news, program contacts Design of the Online Community

Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Increase visibility through shared stories and relevant resources Design of the Online Community

A Home To Share

A Home To Celebrate and Recognize

Provide Access To Information

Synthesize and Filter Windows into the Community

Listen and Participate The Pulse of the Community

Partner Supporting Community Activities

As wonderful as the web is, this kind of philosophical commitment to each other has to take place at least initially in person.