The Post-Caring Experience of Former Family Carers – Evidence from Ireland Breen, Cronin, Hynes, McCallion & McCarron.

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Presentation transcript:

The Post-Caring Experience of Former Family Carers – Evidence from Ireland Breen, Cronin, Hynes, McCallion & McCarron

School of Nursing and Midwifery 24 D'Olier Street Dublin 2 Gaps in understanding Dearth of research focusing on post-caring, especially post- death First Irish study on post-caring Irish post-caring policy & services context -6 weeks Carers’ Allowance/Benefit (i.e.€212/€213 per wk) -No specific health or social care policies in place Research Q: How do family carers perceive their own needs in the post-caring period?

School of Nursing and Midwifery 24 D'Olier Street Dublin 2 Methodology Convenience sampling technique Recruitment via Carers Association & Information Packs 26 semi-structured interviews & 1 focus group (N=14) NVivo 8 - analysis from audio Template analysis (King et al, 2002; Crabtree & Miller, 1999)

School of Nursing and Midwifery 24 D'Olier Street Dublin 2 Participant Details Gender: 7 males, 19 females Age (range 33 to 81 yrs; mode: 58 yrs; median: 56 yrs) Who caring for? - Parent (12) - Spouse (10) - Other relative (4) Length of time caring (range 6 months to 27 yrs; mode: 5 yrs; median: 5 yrs)

School of Nursing and Midwifery 24 D'Olier Street Dublin 2 Primary medical condition of Caree

School of Nursing and Midwifery 24 D'Olier Street Dublin 2 Post-caring transition

School of Nursing and Midwifery 24 D'Olier Street Dublin 2 Time since transition Range: 3 months to 6 yrs Median: 1 yr 6 months Mode: 1 yr 4 months

School of Nursing and Midwifery 24 D'Olier Street Dublin 2 Emptiness & Loss Emptiness of house Cut out of the system Loss of special relationship Enforced retirement without benefits Not prepared for post-caring Pre-caring world is gone (friends/work)

School of Nursing and Midwifery 24 D'Olier Street Dublin 2 Emotional Reactions Anger: - Because of need to fight for services Guilt -Sudden death at home -Worrying about financial issues Anxiety – still feeling ‘on duty’/ inability to sleep Sadness/loneliness (esp at night)

School of Nursing and Midwifery 24 D'Olier Street Dublin 2 Family conflict Especially between siblings Property/legal issues Lack of understanding of post-caring needs Redressing neglect of family members during caring

School of Nursing and Midwifery 24 D'Olier Street Dublin 2 Post-caring support Role of Carers’ support groups Supportive families/friends/neighbours Health services: –removal of equipment –community nurses/G.P. visits – own initiative – no statutory health or social care services

School of Nursing and Midwifery 24 D'Olier Street Dublin 2 Taking care of self Keeping busy Get out of house Proactive – have to do it themselves Giving back – stop focusing on self Comfort from belief in after-life

School of Nursing and Midwifery 24 D'Olier Street Dublin 2 World-less Pre-caring world Caring world New world Former Carers caught between worlds Supports needed to facilitate move to new world

School of Nursing and Midwifery 24 D'Olier Street Dublin 2 Post-Carers’ Needs Preparation for post-caring Counselling Career advice & dedicated return-to-work services Home visits Training sessions on conflict resolution Financial support for longer than 6 weeks Dedicated post-caring support groups & telephone helplines

School of Nursing and Midwifery 24 D'Olier Street Dublin 2 Link to theory Fits with ‘Carer Career’ & Stage Models ( Nolan et al, 2003; Brown & Stetz, 1999; Aneshensel et al, 1995; Lindgren, 1993) Post-Nursing Home Placement stages (Davies & Nolan, 2003; 2004; 2006) Post-death stages (Larkin, 2009)

School of Nursing and Midwifery 24 D'Olier Street Dublin 2 Acknowledgements Funders: Irish Research Council for Humanities & Social Sciences (IRCHSS) and Care Alliance Ireland Recruitment: The Carers Association & 16 centre managers nationwide 40 Former Family Carers