Got Healthcare? Important tools and resources for successful youth to adult health care and management Stephanie Hood, B.A. – Transition Coordinator Meredith Pyle – Title V CSHCN Specialist Maryland Office for Children with Special Health Care Needs

Health Care Transition is: Health care transition is helping young people with special health care needs plan their move from the child-centered health care system to the adult- centered health care system. Some ways that this is done include: – Youth’s current doctors and health care providers discussing the youth’s changing health care needs as they become an adult and eventually seeing adult providers – Doctors and other health care providers encourage youth’s development of self-management skills and knowledge – Families, youth, and providers working together on a written Transition Plan(s)

Some quick facts… Many Maryland families report that their YSHCN do not receive the services they need to successfully transition to health care, work, and independence. – In 2006 only 37.4 %; Maryland ranked 42 nd (NS-CSHCN) YSHCN ages whose families report that…Maryland %Nation % doctors and other health care providers have discussed eventually seeing providers who treat adults doctors and other health care providers have discussed youth’s health care needs as he/she becomes an adult doctors and other health care providers usually or always encourage development of self- management skills and knowledge

Transition Planning Developing a transition plan for YSHCN is an important tool in the process of moving to adulthood Including health care in the transition plan, or developing a separate health care transition plan with care providers, is crucial. Health care transition planning should be done by youth, families, and providers.

Transition Planning Resources for Youth

notebookhttp://cshcn.org/planning-record-keeping/teen-care- notebook

Transition Planning Resources for Parents and Families ns/EmergencyPreparednessTheTakeandGoEmergencyBook. pdfhttp://new.dhh.louisiana.gov/assets/docs/OCDD/publicatio ns/EmergencyPreparednessTheTakeandGoEmergencyBook. pdf

Transition Planning Resources for Providers practiceshttp:// practices

Questions? For questions or additional information, contact: Stephanie Hood, Transition Coordinator at Maryland’s Office for Genetics and Children with Special Health Care Needs at or