I Choose Where and With Whom I Live S U P O R T E S E LF–D I R E C T E D S U P P O R T S L I V I N G July, 2011

Places Owned or Leased by State, County, or Agency: License or Certification Required # of People Who Receive Services Control of Place, Who Lives in Place, Who Works in Place Allowable Setting for Family Care Allowable Setting for IRIS Allowable Setting for CIP and for COP Waiver Typical Service Codes for Reporting State Center for People with DD No size limit FacilityYesNo 503 ICF-MR Other ICF-MR (DD) No size limit FacilityYesNo 503 ICF-MR Nursing Home (Elderly, PD,DD) No size limit FacilityYesNo 503 ICF-MR Residential Care Apartment Complex No size limit FacilityYes Aging/PD only711 - RCAC Community-Based Residential Facility 5-8 people FacilityYes CBRF/5-8 person Community-Based Residential Facility 9 or more people FacilityYes Aging/PD only CBRF for different sizes Licensed Corporate Adult Family Home 3-4 People FacilityYes AFH Certified Corporate Adult Family Home 1-2 People FacilityYes AFH Certified Owner- Occupied Adult Family Home 1-2 People FacilityYes AFH Types of Places People Live While Receiving Long-Term Support in Wisconsin: Incomplete DRAFT FOR DISCUSSION at July, 2011, SDS Network

Places in Which Person Receiving Support or Person’s Family Owns or Leases: No License or Certification Required # of People Who Receive Services Control of Place, Who Lives in Place, Who Works in Place Allowed for Family Care Allowed for IRIS Allowed for CIP and for COP Waiver Typical Service Codes for Reporting Supported Living: Agency provides ongoing support and assistance to person beyond providing direct support workers. Support can be occasional, and up to “24/7”. Typically 1- 3 people Person or family hold lease or mortgage and control who lives there: Agency,person,family typically determine who works there Yes Differs between FC, IRIS and other waivers: Typically 104 SHC. May include PCW. Dane County uses 609 CDS and PERS Employee Leasing: Agency provides staff but not additional ongoing support and assistance to people living in own home or home of family Typically 1- 2 people Person or family control place and who lives there: Agency typically controls who works there, with input from person Yes All are considered 104 SHC Co-Employment: Own home or living with Family: Hire staff through a Agency Typically 1- 2 people Person or family control place, who lives there, and who works there Yes All are considered 104 SHC Own home or living with Family: Hire staff directly, pay payroll taxes and perform other employer duties Typically 1- 2 people Person or family control place, who lives there, who works there Yes All are considered 104 SHC Own home or living with Family: no paid support Person or familyYes

What is Supported Living? Supported Living is an alliance between a person who requires long term, publicly funded, organized assistance and an agency whose role is to arrange or provide whatever assistance is necessary for the person to live in a decent and secure home of the person’s own. - adapted from John O’Brien, 1993

What is Supported Living? The phrase home of the person’s own emphasizes that people who receive Supported Living own or lease their home. The home “belongs” to the person, not to a service provider. The importance of that characteristic cannot be overstated.

The role of the agency is “… to arrange or provide whatever assistance is necessary.” This emphasis differentiates Supported Living from other important ways people have organized assistance within their own homes. What is Supported Living?

 Supported Living  enables people to lease their own apartments or own their homes,  with their choice of roommates and staff,  with a variety of paid and unpaid support tailored to the needs of each person.  People in supported living may need little support from services, or they may need 24-hour support.  The kind and amount of support is tailored to the individual's needs.

Supported Living is Found  In relatively small, “stand-alone agencies” across Wisconsin, the US, Canada the UK, Ireland, Australia  As a service created by families, particularly in Australia  Increasingly as an option within larger service agencies

Supported Living in Wisconsin  Began in Dane County, with Options, and is the most prevalent residential service in Dane County  Agencies from one end of the state to the other, from Syldan, Inc in Racine to New Horizons North in Ashland  Growing within Family Care, particularly within Community Care of Central Wisconsin  Many providers are exploring organizational changes needed to offer supported living

Next Steps in Wisconsin  Continue to build understanding within DHS, IRIS and Family Care of importance of and cost-effectiveness of supported living;  Expand Supported Living working group;  Develop a learning group of agencies wanting to offer supported living, and engaging in the ongoing learning needed;  Support and assist individuals and family members who would like to develop small supported living agencies.

Next Steps in Wisconsin  Complete written materials that describe how Supported Living works (and share materials that have been developed in the past);  Complete a description of how Supported Living has become an effective option within Family Care (CCCW);  Enable IRIS to more effectively offer Supported Living  Your idea here: _____________________

Learn More  Contact Dennis Harkins, InControl Wisconsin at to be part of the Supported Living work group, to learn more about what we are doing in Wisconsin, to suggest what we might do better.  See more detailed planning on Supported Living at incontrolwisconsin.org/. View What We Are About and go to Supported Living.incontrolwisconsin.org/  Join an international conference on Supported Living this September in San Francisco – contact Dennis for a brochure.