1 Health Information Technology (HIT) California Council on Science and Technology February 2009 Alfonso F. Cardenas, UCLA

2 Healthcare in $787 Billion Federal Stimulus Package Assist states with Medicaid: 90 billion Assist states with Medicaid: 90 billion Subsidize unemployed healthcare under COBRA program: 25 billion Subsidize unemployed healthcare under COBRA program: 25 billion Modernize HIT: 21 billion Modernize HIT: 21 billion Construction of NIH facilities and research: 10 billion Construction of NIH facilities and research: 10 billion Prevention/wellness programs: 1 billion Prevention/wellness programs: 1 billion

3 Task Force 3: Health Information Technology Examine HIT infrastructure goals and efforts for the State in the context of PM, especially archiving and sharing of information and materials for biomarker validation

4 Candidate Topic Areas Examine and recommend improvements to data storage and management infrastructure Recommend policies and means of archiving and sharing information and materials – –Currently no clear guidelines for sharing that protect patients privacy and allow researchers access to vast amounts of information to validate biomarkers and supporting technologies improve health and medical care – –Inter-institutional mechanisms need to be created, taking into account legal and policy issues

5 Candidate Topic Areas Assess impact of GINA and of non- genetic biomarker-based information on archiving and sharing of information and materials

6 Possible Outcomes Recommendations to State and Privacy and Security Advisory Board for validating and sharing information, tools and materials of PM Scoping of potential prospective pilot for archiving and inter-institutional sharing of information and materials of PM