Faculty Mentor: Judith Holt, PhD Trainees: Mari Beitman, DMDJulie Martinez, LSW Brandalyn Chidsey, GCShelley Woeste, DPT Consumer Consultant: Eric Stoker Medical Home Portal Coordinator: Mindy Tueller

Medical Home Portal Website

Project Overview Purpose: Define and organize the services listed in the “Services & Resources” section of the Medical Home Portal Website: Goal: To provide clear information and easy access to valuable services and resources listed on this medical reference website for medical providers and families of children and youth with special health care needs

Project Overview METHODS: – Preliminary communication to solidify the process Google+ hang out, communications, Dropbox Met with Mindy Tueller, Medical Home Portal coordinator – First protocol – solely descriptions – Evolved second/final Model protocol more comprehensive

Project Overview PROCESS: – Tracked through Excel Spreadsheet – Protocol Researched evidence based practices and services available Analyzed expected and actual services listed in category Constructed category description – Focus – Full explanation & brief description – Key words or phrases Peer review and Medical Portal Team Review

Project Overview Results – Total of 59 descriptions were created Discussion – Benefits for consumers – Benefits for trainees – Advocacy – Breastfeeding – Care Coordination – Child Abuse/Neglect – Child Care & Respite – Education/Schools – Finances – Healthcare- Dental – Healthcare- Related Services – Recreation – Transition to Adulthood – Equipment

Project Overview CHALLENGES & LIMITATIONS: – Defining project – Knowledge about categories – Appropriate reading level FUTURE DIRECTIONS: – Continued maintenance to keep relevant – Increasing awareness to surrounding states

Special Acknowledgments Medical Home Portal Team – Mindy Tueller, Medical Home Portal Program Manager – Chuck Norlin, MD-Medical Home Portal Director – Gina Pola-Money – Family Consultant URLEND Consumer Consultant – Eric Stoker URLEND Faculty & Leadership Project Advisors – Judith Holt, PhD – Janice Palumbos, CGC – Heidi Lane, PT, DPT, PCS – David Derezotes, Ph.D. – James Bekker, DDS

Questions?

URLEND Feedback: Julie Interdisciplinary teamwork – Discipline culture – Respecting expertise while contributing outside of our expertise Diverse didactic trainings – Family living, Legislative activity, Evidence based practices, Etc. Individuals with special health care needs – Learning the lingo – Awareness of their needs and their rights

URLEND Feedback: Mari Collaboration – – Introduction to specialists in the area – Excellent referral resources – Leadership project People First Language – – Awareness Family dynamics - – PDC’s – Clinic hours – Parent advocates

URLEND Feedback: Brandalyn Legislative Activities – More encouragement and guidance in hands-on activities in the legislative process PDC’s – Excellent opportunity to learn about the role of other disciplines and a model for interdisciplinary care Responsibility – Encourage more assignments, pre-seminar collaboration, and responsibility and for pre- seminar assignments and readings

URLEND Feedback: Shelley Advocacy & Leadership Leadership project online tool; Hx of disability law & policy; South Main Clinic Suggestions: Online calendar listing legislative/advocacy activities; sharing of legislative experience; face time with Med Home Portal Team Medical Home Child & family-centered approach with partnership by pediatric care team to provide continuous, coordinated and culturally effective care; panels with young adults & URLEND family partners Suggestions: PDC’s have wider range of dx/needs with possible evening time to accommodate schedules; South Main Clinic experience with more info regarding target population/specific questions to meet needs & promote participation; timely sharing of South Main Clinic experience Knowledge & Networking Current trends, topics, & research by varied guest speakers & faculty; clinical experiences foster professional connections among multi-disciplines Suggestions: Weekly assignments/reading with interactive seminars; online calendar for clinical opportunities; clearer expectations for trainees

15 URLEND Feedback: Eric Fun & Interesting Favorite seminars: Interactive panels with young adults with special needs; transition training lead by Louise Dunn; autism topics Working with a Great Leadership Project Team Thanks to Judith Holt as our project mentor Meeting many new people Sharing experiences and learning from each other’s perspective Suggestions: Some confusion during certain seminars with jumping around between very different topics Include more interactive panels with individuals & families with special needs Include Swedish fish for seminar snacks!