Radiotherapy Data Collection Helen Forbes National Cancer Services Analysis Team

 Partly funded by Cancer Action Team in England  Remainder from project work  Carry out a range of innovative healthcare data analysis  Accessible presentation of routine hospital admission/attendance data  Geographical Mapping  Web data collection and reporting tools

RTDS ‘A dataset intended to collect data regarding every patient treated with radiotherapy in the NHS in the UK’

Data Extraction  Vast majority of data items already held and entered by radiographers using verify & record system databases  No requirement (when the project began) to report any radiotherapy activity –No agreed coding methods –No agreed currencies (courses, prescriptions etc.)

HRGs/OPCDS In parallel to the development of the RTDS –HRG 4 released –Recommendation to use out-patient commissioning dataset to report HRG –Potential requirement to re-key all radiotherapy attendances into PAS (Patient Administration Systems) in order to generate the OPCDS

Dataset  In agreement with –Representatives of SCOR –Payment By Results Team –Data Dictionary and Modelling Team –Information Centre HRG team  To produce ONE dataset which meets the needs of the RTDS, the OPCDS and collects the HRG for PbR

Dataset  Allows Trusts to generate the OPCDS without entering radiotherapy attendances into PAS  Takes all ‘attendance specific’ information from Radiotherapy Management Systems  Takes most information not routinely recorded on Radiotherapy Management Systems from PAS

Dataset  Extraction routes –Reports are provided to facilitate extraction of data from Visir/Oncentra, Varis/Aria, Lantis/Impac –Specification is provided to get relevant data from PAS (will need to use local information people) –Toolkit is provided to generate OPCDS (for commissioning/PbR) and radiotherapy ‘tail’ from the two data sources

Dataset  One record produced for each attendance for radiotherapy (ie: one per fraction – unless patient has concurrent radiotherapy)  Record is made up of –OPCDS (a long-established dataset within the NHS in England) –Radiotherapy Tail  Radiotherapy Tail is made up of –One or more Episode records (which will be identical for every fraction in this episode) –One or more Prescription records (which will be identical for every fraction in this prescription) –One or more Exposure records (for each exposure given on this attendance

Data Collection  Diagnosis  Waiting times  Anatomical site treated  Procedure codes for planning and delivery

Data Collection  Manual co-written with Varian to advise on collection methodology for Aria

Data Extraction  Demographic data extracted from PAS as per specification  Radiotherapy data extracted from Aria using reports developed by Varian  NATCANSAT Toolkit combines data from both sources to generate specified RTDS output

Data Submission  Output file submitted directly to NATCANSAT –Using ftp upload of encrypted file to nww server –Using NHS Connecting for Health secure file transfer via nhs.net  OPCDS submitted via SUS in England  Quality Assurance process completed within 24 hours  QA Pass data uploaded to server

Reporting  Reports run from live server data  New data has interim status for one week

Reporting  NATCANSAT Analysis in combination with other data sources  NCIN Central Data Repository in England  RTDS used to feed NCASP cancer audits  Available to analysts/researchers for other projects subject to governance framework

NATCANSAT Support  Telephone helpline (staffed by humans) in office hours  Support to modify the reports and extraction tools to fit in with local data entry practice

More Information General website: Analysis website: nww.natcansat.nhs.uk (only accessible from an NHSNet connection) Helpdesk