What We Can Learn From. What is PatientsLikeMe.com? A networking site in which patients can interact and share information with other patients who are.

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Presentation transcript:

What We Can Learn From

What is PatientsLikeMe.com? A networking site in which patients can interact and share information with other patients who are coping with the same disease

Includes more than 1,200 different conditions Over 200,000 Users Collects info. on treatment history, side effects, hospitalizations, symptoms, disease-specific functional scores, weight, mood, quality of life, etc… Mentioned in more than 1,000 publications So how do they stay organized??

Colors make for easy comparison Most common symptoms I am a patient or researcher who is really interested in the anxiety that Crohn’s patients experience

A Study on Anxiety Most Popular Drug Treatment -Different Design -Same Point

But is Clonazepam right for me? the who the what the how the why Nothing like shopping with all the answers!!!

And The Personal read comments written by those that have already gone through the experience send other patients a private message and begin a discussion about the issues that are bothering you gain the sense that you are not alone

Relevant To Us: The Doctor Visit Sheet -A noteworthy space saving technique that PatientsLikeMe uses is color coded line graphs. A PDF sheet for a patient to share with their doctor covering measurements of QOL, history of symptoms as well as the different labs and tests that a patient has had