IMPROVING THE PATIENT EXPERIENCE Future direction for specialist learning disability health services Jo Poynter -12 th October 2010

The Future

What we don’t know

What we do know

What we also know - cont Social Care Special Educational Needs

What we also know

The vision “All people with a learning disability are people first with the right to lead their lives like any others, with the same opportunities and responsibilities, and to be treated with the same dignity and respect. They and their families and carers are entitled to the same aspirations and life chances as other citizens.”

Guiding Principles  Rights:  Independent living:  Control:  Inclusion:

Tough News The Healthcare Commission Reports into Cornwall and Sutton and Merton The Disability Rights Commission Formal Investigation into health inequalities ‘Death By Indifference’ The Healthcare Commission Audit of learning disability health services Healthcare for all – Michael Inquiry Six lives – Ombudsman's report

The NHS Agenda for the Healthcare of People with Learning Disabilities 1.General Healthcare – dealing with health inequalities in mainstream healthcare 2.Specialist learning disability health services – being evidence based and up to date 3.Stopping doing the things the NHS shouldn’t be doing

The Primary Care commissioning Framework DES – annual health checks for people known to Social Services Darzi - work streams New guidance on health action planning and health facilitation. A Guide on the NHS meeting the Disability Equality Duty Michael inquiry Confidential enquiry Public Health Observatory Self Assessment Framework Help!

Mainstream Health  Only 41% of people with a learning disability known to local services have had a health check  Access and support in hospitals remains poor but there are an increasing number of liaison nurses  Health Self Assessment tool

Transitions Specialist Paediatric services to GP

Mental health services  People with learning disabilities are entitled to the support they require to access mainstream mental health services

Specialist and mental health services  Some people with a learning disability will require specialist support for assessment and treatment.  Specialist services will help people with learning disabilities to access health professionals from mainstream health services.

Secure/Forensic Services  Diversion  Specialist support through pathways

Offender health  20–30% of offenders have learning difficulties or learning disabilities  7% of offenders in prison have Learning Disabilities

Specialist Health – Current work North West – Chronic conditions North East – Health and provider links Yorkshire and Humber – Assessment and Treatment East Midlands - CTLDs Eastern – Specialist health in acute care London - People with learning disability South East – Mental Health West Midlands – Family carers South West – Developments from Campus closure

Opportunities  Access to Mainstream Health Services  Transitional Health Support  Access to Mental Health Services  Assessment and Treatment  Secure/Forensic services  Offender Health  Leadership