ELSA English Longitudinal Study of Ageing Future Activities Carli Lessof National Centre for Social Research Introductory workshop to the English Longitudinal Study of Ageing 5 July 2005 Royal Statistical Society, London Future Activities Carli Lessof National Centre for Social Research

HSE 1998 & Nurse Visit HSE 1998 & Nurse Visit ELSA Wave One 2002/3 Core Interview (12,100 respondents) ELSA Wave One 2002/3 Core Interview (12,100 respondents) ELSA Wave Two 2004/5 Core Interview + Nurse Visit ELSA Wave Two 2004/5 Core Interview + Nurse Visit ELSA Wave Three 2006/7 Core Interview + Retrospective Interview ELSA Wave Three 2006/7 Core Interview + Retrospective Interview The English Longitudinal Study of Ageing HSE 1999 & Nurse Visit HSE 1999 & Nurse Visit HSE 2001 & Nurse Visit HSE 2001 & Nurse Visit

ELSA English Longitudinal Study of Ageing Survey Content at Wave 3 As at Wave 2 core modules remain Repeat cross-sectional questions Dependent interviewing where prior data is available (Temporary) removal of some questions Some additions Revisions to health questions e.g. dental health Take-up of benefit Expectations of life expectancy Reintroduction of questions e.g. GHQ12, social capital Vignettes Experimental module on diet and physical activity

ELSA English Longitudinal Study of Ageing Major Changes at Wave 3 Continuation with Institutional and Exit interviews Introduction of refreshment sample Longevity of the study Key pre-retirement group and cohort effects Aged and their younger (and older) partners Current plan for HSE 2001, 2002, 2003 Retrospective interview

ELSA English Longitudinal Study of Ageing ELSA Life History Data Background and motivation Development timetable Methodology Content Validation

ELSA English Longitudinal Study of Ageing Why Collect Life History Data? History of birth cohort studies in Britain Shown influence of early and mid life events Identified social and biological chains of risk ELSA has a relatively large fraction life unobserved Are there measures we can obtain that will help explain future outcomes and trajectories?

National Survey of Health and Development (NSHD) Those living in GB born 3-9 March, 1946 National Survey of Health and Development (NSHD) Those living in GB born 3-9 March, 1946 National Child Development Study (NCDS) All those living in GB born 3-9 March, 1958 National Child Development Study (NCDS) All those living in GB born 3-9 March, British Cohort Study (BCS70) All those living in GB born 5-11 April, British Cohort Study (BCS70) All those living in GB born 5-11 April, 1970 Millennium Cohort Study (MCS) All those born in selected areas of UK over 12 months beginning September 2000 in England and Wales, and December 2000 in Scotland and Northern Ireland Millennium Cohort Study (MCS) All those born in selected areas of UK over 12 months beginning September 2000 in England and Wales, and December 2000 in Scotland and Northern Ireland The four British birth cohort studies

ELSA English Longitudinal Study of Ageing UK Cohort data Year of birth Age NSHDNCDSBCSMC

ELSA English Longitudinal Study of Ageing UK Cohort data ELSA Year of birth Age NSHDNCDSBCSMC 1952

ELSA English Longitudinal Study of Ageing UK Cohort data NCHDNCDSBCSMC Year of birth Age 1902ELSA 1956

ELSA English Longitudinal Study of Ageing UK Cohort data NCHDNCDSBCSMC Year of birth Age 1902ELSA 1956

ELSA English Longitudinal Study of Ageing UK Cohort data NCHDNCDSBCSMC Year of birth Age 1902ELSA 1956

ELSA English Longitudinal Study of Ageing Types of Life History Data Collected Measures in core questionnaire Administrative data Retrospective survey to cover life pre-ELSA

ELSA English Longitudinal Study of Ageing Recall data in ELSA baseline/core (1) Early life events Who study member lived with in childhood Employment of study members father/parent when 15 Education At HSE asked for highest educational qualification At Waves 1, 2 & future waves ask for new qualifications Relationships and fertility Household membership and relationships from W0 Living children (within and outside household) from W1

ELSA English Longitudinal Study of Ageing Housing and geographical mobility Address and characteristics of home from W0 (HSE) Postcode related information about area Health events Major health events ever and since last wave Jobs, income and pensions Job, NS(SEC), SOC2000 from W0 onwards Including main job for those already retired Recall data in ELSA baseline/core (2)

ELSA English Longitudinal Study of Ageing Linkage to administrative data NHS Central Register Employer (for private pension plan details) Hospital Episodes database National Insurance contributions (post 1978) Benefits (incl. state pension payments) and tax credits (post 1999)

ELSA English Longitudinal Study of Ageing Development of the Retrospective Interview Design and content in development Decisions are inter-linked Pre-pilot September 2005 Pilots in approx November 2005 and January 2006

ELSA English Longitudinal Study of Ageing Design and methodology Life-grid methods good for autobiographical recall Berney and Blane; Belli instrument for PSID But in addition we will want Detailed routed follow-ups for events/spells More general retrospective recall items Paper, computer or hybrid methodology Combine life-grid with recall follow-ups delivered by CAPI

ELSA English Longitudinal Study of Ageing Design questions Individual (but may check demographics with couples) Same interviewer Immediate follow-up (off-year survey in 2007 possible) Feed forward from ELSA core or independence Degree of precision - year, decade, life-stage

ELSA English Longitudinal Study of Ageing Content: General principles Motivation for inclusion of topics/questions that are: Predictive of late life events and trajectories Prevalent Recalled with acceptable degree of precision We will not have topics that are solely of interest for: Modelling trajectories pre-ELSA Understanding cross-sectional prevalence of early life factors for older cohorts

ELSA English Longitudinal Study of Ageing Content (1): Family and demographics Place of birth and subsequent residences Location and tenure; characteristics; area characteristics Periods evacuated, abroad, in army, in institutions Marriage / divorce / cohabitation / widowhood Pregnancies and births Parents age and cause of death Quality of relationships with parents, sibs, carers

ELSA English Longitudinal Study of Ageing Content (2): Early life Education history Indicators of material circumstances: bath/indoor toilet/water supply; shared bedrooms; books Relationship with parents

ELSA English Longitudinal Study of Ageing Content (3): Employment Start and end of job (and employer) spell Full time / part time Pension membership (Yes/No) Earnings when started; earnings when stopped Job characteristics Physical, intellectual, emotional demands of work; control and effort/reward in job; exposure to risk

ELSA English Longitudinal Study of Ageing Content (4): Health History of CVD, cancers and osteoarthritis Information about hospitalisations and operations Serious injuries Smoking history - times stopped started/periods Age of menarche and menopause

ELSA English Longitudinal Study of Ageing Content (5): Other Life-events Migrant experiences Whether life similar to parents / children Subjectively most important life events

ELSA English Longitudinal Study of Ageing Some possible validation exercises Overlap between prospective and retrospective accounts for example in housing transitions and employment spells Comparing administrative health data with retrospective histories e.g. knee replacements and other surgery Compare National Insurance Contribution records with accounts of employment history, opting out of SERPS, etc Comparison to NCHD and NCDS cohort histories

HSE 1998 & Nurse Visit HSE 1998 & Nurse Visit ELSA Wave One 2002/3 Core Interview (12,100 respondents) ELSA Wave One 2002/3 Core Interview (12,100 respondents) ELSA Wave Two 2004/5 Core Interview + Nurse Visit ELSA Wave Two 2004/5 Core Interview + Nurse Visit ELSA Wave Three 2006/7 Core Interview + Retrospective Interview ELSA Wave Three 2006/7 Core Interview + Retrospective Interview The English Longitudinal Study of Ageing HSE 1999 & Nurse Visit HSE 1999 & Nurse Visit HSE 2001 & Nurse Visit HSE 2001 & Nurse Visit ELSA Wave Four 2008/9 Core Interview + Nurse Visit ELSA Wave Four 2008/9 Core Interview + Nurse Visit