A testimony from young patients Timo Nerkko Finland Ceapir Budapest, October 25, 2010

The involvement of young patients Ceapir has two meetings - spring with GA - autumn with some special theme Ceapir’s youngsters have their own planning group - own report - what they want and are looking forward to receiving from “the old kidneys”

Conferences for young kidney patients Knowing - what can we do together? Seeing - there are many other young patients Being - a good and living organisation needs me and I need them

Young patients’ needs and interests Young patients want fast action => something will have to happen!!! Meet others Work together Have some fun and good feelings

Young patients’ involvement Future – and dreams - how patients’ work would look ‘sexier’ in the media - every patient organisation must be seen and heard in social media (facebook, twitter) - national and local levels: every board has to give room for the young (plans and actions) - young patients have the right to make decisions about their own patient work - involvement in decision-making

Have a good time with the young ones! Take good care of your young patients! Give a chance! Tinja 1,5 years

Thank you! Kiitos! Köszönöm! Tinja 12 yrs