7.35PHTS Business DCC Update/QID. Naftel Database CommitteeR. Gajarski (W. Mahle) Foundation UpdateA. Dipchand Financial RoadmapW. Mahle 8:15 Hard to Forget: The Challenge of Desensitization in Heart Transplant Candidates Jon Kobashigawa, MD 8:45PHTS Scientific Committee ReportW. Mahle 8:50Total Artificial Heart in ChildrenTimothy Baldwin, PhD 9:20Maintenance SteroidsS. Auerbach 9:25PVRM. Richmond (W. Mahle) 9:30AdjournW. Mahle

PresidentBill Mahle Vice PresidentRob Gajarski Past PresidentAnne Dipchand Non Physician RepHeather Bastardi Members at largeRichard Kirk Shelley Miyamoto Paolo Rusconi Melanie Everitt DCC representatives UABDavid Naftel Margaret Tresler

7 Publications

Journal of Heart and Lung Transplantation Volume 30, Issue 12, December 2011, Pages

Pediatric Transplantation Volume 15, Issue 8, December 2011, Pages

Journal of Heart and Lung Transplantation Volume 31, Issue 2, February 2012, Pages

Journal of Heart and Lung Transplantation Volume 31, Issue 2, February 2012, Pages

Journal of Heart and Lung Transplantation Volume 31, Issue 5, May 2012, Pages

Circulation Volume 126, Issue 9, September 2012, Pages

Journal of Heart and Lung Transplantation Volume 31, Issue 9, September 2012, Pages

TopicPI/SRIStatus Donor Characteristics Conway (HSC) Dipchand (HSC) Submitted to JHLT Pediatric Transplantation Registry Dipchand (HSC) Kirklin (UAB) Accepted with Revisions Plastic BronchitisGossett (CMC) Pahl (CMC) Revisions Submitted

TopicPI/SRIStatus RevascularizationJeewa (TCB) Dipchand (HSC) Final Draft Form NutritionWhite-Williams (UAB) Castleberry (CHW) Zangwill (CHW) First Draft ECMODipchand (HSC) Webber (CHP) Draft Manuscript Fetal Listings Conway (HSC) Miyamoto (UCM) Final Draft Form Risk Assessment- Congenital Schumacher (MCH) Gajarski (MCH) Draft Manuscript Risk Assessment- Non Congenital Schumacher (MCH) Gajarski (MCH) Draft Manuscript CAV Kindel (CMC) Pahl (CMC) Draft Manuscript AdolescenceVanderPluym (BCH) Blume (BCH) Draft Manuscript

TopicPI/SRIStatus PVRRichmond (CPM) Mahle (ECH) Submitting to ISHLT 2013 SteroidsAuerbach (UCM) Miyamoto (UCM) Submitting to ISHLT 2013

Ventricular Assist Device (VAD) Support as a Bridge to Pediatric Heart Transplantation: A Practice in Rapid Evolution Anne Dipchand, MD (HSC), David Naftel, PhD (UAB), Margaret Tresler, MPH (UAB), Elizabeth Blume, MD (BCH), Richard Kirk, MD (FRH), William Morrow, MD (ACH), Scott Auerbach, MD (UCM), Marc Richmond, (CPM), David Rosenthal, MD (SUM), James Kirklin, MD (UAB) Session Info: Pediatric Cardiac Surgery: Long Term Outcomes and Concerns Presentation Time:Wednesday, November 7, 2012, 9:00 am – 5:00 pm Poster:12217 Room:Kentia Hall, Core 3

Deadline January 31, 2013 Deadline January 31, 2013

January 31 – Submission Deadline February 15 – Grading Deadline March 15 – Inform PIs Process for Peer Review – Blinded to authors and institution – Scientific committee (9 members) + DCC – Score /10 in 3 categories: Importance of topic, quality of proposal, feasibility  total score /30 – Scores averaged then group discussion to facilitate final decision

 The Scientific Committee will review all proposals and base approval on the following criteria:  The scientific merit of the proposal.  Conflict or overlap with other requests.  Concordance with the goals of PHTS.  Resource limitations of the DCC.  Equitable distribution of approved proposals across participants.

Principal investigator initiating the research proposal and data analysis. Co-investigators selected by the Steering Committee; considers recommendations from the PI and/or specific expertise Representation from the DCC. Representation from the Scientific Committee