Recruiting within AMSs AMSWS can recruit patients for studies like SCIPPS but note: Must have ethics approval from Aboriginal ethics committee –I.e. Aboriginal Health & Medical Research Council Ethics Committee for NSW involve AMS early needs to be approved by Board partnership approach

Cultural issues Just because its 200 years + since invasion don’t think we have lost our culture Modern urban Aboriginal culture is strong and alive Every community is different

Ownership of research by Aboriginal people What is being collected? The right researcher Ownership of health information Writing it up and publishing – also need approval of research findings & report by ethics committee and AMS before publication

guiding principles regarding the use of Aboriginal health information, including research data. Access through “research and ethics” at NSW Aboriginal Health Information Guidelines 1998

Other resources Coalition for Research to Improve Aboriginal Health (CRIAH) - a partnership between Aboriginal communities and researchers to encourage and facilitate research that will improve Aboriginal health “CRIAH Tools for Collaboration”, also available at

Research linked to action “Don’t go into communities and promise things you can’t deliver”