LANCE ARMSTRONG FOUNDATION Founded in 1997 by Lance Armstrong Unite people to fight cancer Take aim at the gap between what is known and what is done Our mission: To inspire and empower people affected by cancer Unity is strength. Knowledge is power. Attitude is everything. LIVESTRONG

OVERARCHING GOAL To promote a greater awareness of cancer and increase the utilization of services among Hispanic/Latino and Adolescent/Young Adults (AYA) cancer survivors and their loved ones.

WHAT WE KNOW… We know that… –The Hispanic/Latino population is now the largest minority population in the US –Cancer is the leading cause of morbidity & premature death among Hispanic/Latinos –Access to screening and care is a major barrier for Hispanic/Latinos –Survival rates for AYAs (ages 15 – 39) have not increased since 1975 –Cancer is the leading disease killer among AYAs –Health system barriers, such as timely referrals, lead to delayed diagnosis of AYA cancers

WHAT WE ARE GOING TO DO… Over the next five years, we will: –Create a cadre of 300 Spanish-speaking community health workers who are trained and knowledgeable in providing appropriate support and services to Hispanic/Latino people by cancer –Increase the awareness and utilization of the LAF’s culturally appropriate resources and support services by Hispanic/Latinos affected by cancer –Increase healthcare providers’ awareness of AYA cancers and their ability to refer to appropriate specialists

PROMOTORAS TRAINING – YEAR ONE Objective: Create an online learning platform and train at least 25 Promotoras on cancer survivorship –Use the existing Cancer Survivorship Training Curriculum –Film an in-person training of Promotoras –Create an additional “application” module –Pilot test the online platform for usability and cultural relevancy

PROMOTORAS TRAINING – YEAR ONE Evaluation: –The online platform will be pilot tested for usability, cultural relevancy and effectiveness –Each person who completes the online training will complete a pre & post test to measure their knowledge and confidence levels before and after the training –Participants will also evaluate the training course

SPANISH OUTREACH CAMPAIGN In 2008, the LAF created to provide culturally-relevant information to Hispanic/Latino cancer survivors and their loved ones To promote the website, the LAF created 8 60-second radio spots and produced 5 one- hour radio call-in shows Each promoted the Spanish website and LIVESTRONG SurvivorCare

SUCCESS of the CAMPAIGN From June 2 – December 31, 2008: –LIVESTRONG SurvivorCare received over 400 request for services through the toll-free number and LIVESTRONG.org/espanol –LIVESTRONG.org/espanol had over 11,982 unique visits

SPANISH OUTREACH CAMPAIGN – YEAR ONE In 2009, we plan to: –Create webisodes and audio podcasts that will provide information about cancer, the LAF and existing LAF resources and services –Re-air the 8 radio segments for a total of 8,510 broadcasts in 2009 –Produce 5 new radio call-in shows –Create a viral marketing campaign that will include placement of 3 banner ads on high traffic Spanish websites –Continue to add educational content and Spanish- language survivor stories to

SPANISH OUTREACH CAMPAIGN – YEAR ONE Evaluation: –The content for the webisodes, audio podcasts and designs for the banner ads will be pilot tested –We will continue to evaluate the Spanish website and create an incentive campaign to encourage viewers to complete the online survey –We will continue to monitor website traffic, number of individuals who access tools and resources available through the Spanish website and the number of people served through LIVESTRONG SurvivorCare

AYA CAMPAIGN– YEAR ONE Objective: Create a framework that will serve as the guiding principle in the creation of educational materials for young adults affected by cancer and those who serve them. –Create a 10 question survey that will be completed by college students during 3 campus tour –Conduct Man-On-The-Street interviews with college students and campus healthcare providers discussing their perceptions of cancer –Note: The footage collected in this process will be used to create educational materials for AYAs and healthcare providers in subsequent years

AYA CAMPAIGN– YEAR ONE Committed Colleges: Iowa State University Nebraska Indian Community College Brown University Rochester Institute of Technology Penn State- Abingdon Eastern Carolina University University of Denver Oregon State University

AYA CAMPAIGN– YEAR ONE Pending Colleges: University of Texas- Austin University of Wisconsin Monroe Community College St. Olaf College

MAJOR ACCOMPLISHMENTS To date, we have: –Successfully appointed an AYA advisory panel- includes experts in adolescent health, young adult oncology, cancer survivorship, youth marketing, and college health –Continued partnership with the 2008 Spanish Outreach Campaign Advisory Panel – includes 10 experts who are healthcare providers, Promotoras, cancer survivors and executive directors from other Community-based Organizations –Recruited 15 Promotoras and 2 “star” Promotoras to participate in the in-person training scheduled for January 30 th in San Jose, CA.

LESSONS LEARNED Difficult to recruit male Promotores to participate in the in- person training Challenge to schedule campus interviews due to Spring Break

Thank You! Haley Justice, MPH, CHES