Combining Structured Data and Connectivity to Serve Consumers Presentation by W. Gregory Feero, M.D., Ph.D. National Human Genome Research Institute March.

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Presentation transcript:

Combining Structured Data and Connectivity to Serve Consumers Presentation by W. Gregory Feero, M.D., Ph.D. National Human Genome Research Institute March 2, 2010

A crucial tool for primary care

Standards-based

Achieved in 2008 by a public/private task force convened by the AHIC Personalized Health Care workgroup Defined the minimum FHH data elements that every EHR and PHR should be able to capture HITSP approved interoperability Dec –See: ?&PrefixAlpha=1&PrefixNumeric=08http://hitsp.org/ConstructSet_Details.aspx ?&PrefixAlpha=1&PrefixNumeric=08 7 New Standards and Enhanced Utility for Family Health History Information in the Electronic Health Record: An Update from the American Health Information Community's Family Health History Multi-Stakeholder Workgroup W. Gregory Feero, Mary Beth Bigley, Kristin M. Brinner The Family Health History Multi-Stakeholder Workgroup of the American Health Information Community J Am Med Inform Assoc 2008; 15: Arriving at Standards

Openly-available source code

Partnerships: Broader Reach, Greater Impact

The HealthVault Connection

What partnership means: Information Sharing

13 What partnership means: Information Utility

14 Mary’s story Mary is a 41-year-old mother of three who recently returned to Minnesota to care for her aging parents. Mary’s brother Mel has recently been diagnosed with colorectal cancer. Mary needs personalized information about what her brother’s diagnosis may mean for her own health management and her family’s.

My Family Health Portrait Structured Data + Connectivity = Interoperability

35 Surgeon General's My Family Health Portrait Family Health History

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