CCPI and the USAPI Regional NCD Road Map: areas for collaboration Cancer Council of the Pacific Islands 51 st PIHOA Meeting * November 15, 2011 * Honolulu, HI Johnny Hedson President, CCPI Pohnpei State DHS

Objectives Discuss possible roles for CCPI in Regional NCD Roadmap efforts Discuss potential areas of contribution Discuss requirements for successful collaboration for NCD control We have also supplied a packet describing the USAPI Regional Cancer Programs, USAPI Regional CCC Plan goals/objectives and a summary grid describing areas we seek collaboration to successfully implement the regional cancer plan

CCPI / Regional Cancer structure CCPI = 2 Representatives from each jurisdiction appointed by Chief Health Officer – One clinical sector ; one public health sector – Position of influence and passionate – Willing and able to be a change agent locally Jurisdiction CCC Coordinators

CCPI Regional advisory body to all USAPI Regional Cancer Programs: All programs built to synergize and to augment jurisdiction CCC efforts and leverage resources Main technical partner and Secretariat – University of Hawaii, JABSOM Department of Family Medicine & Community Health (Drs. Palafox, Buenconsejo-Lum)

Intercultural Cancer Council (since 2000) NCI/NIH Pacific Cancer Initiative ( ) Asian Pacific Islander American Health Forum / API National Cancer Survivors Network (since 1997) HRSA BHPr Pacific Association for Clinical Training ( ) National Partnership for CCC (since 2003) CDC DCPC Comprehensive Cancer Control Planning ( ) CDC DCPC Discretionary funding Registry assessment / feasibility study (2005) CDC DCPC Comprehensive Cancer Control Implementation CDC DCPC Pacific Regional Registry CDC REACH US Center for Excellence in the Elimination of Disparities (CEED) CDC DCPC Discretionary funding HPV/Cervical Cancer prevention & screening project Partnerships in USAPI Cancer Control

Cancer Council of the Pacific Islands (Advisory Board) Cancer Council of the Pacific Islands (Advisory Board) Pacific Cancer Coalition University of Hawaii Cancer Center (technical assistance) U54 MI/CCP Partnership with University of Guam Hawaii Tumor Registry Pacific Cancer Research Group International Partners with PIHOA (SPC, WHO) U.S. National Partnership for Comprehensive Cancer Control University of Hawaii JABSOM Department of Family Medicine (administrative, technical assistance) Regional Comp Cancer Regional Cancer Registry Pacific Center of Excellent in the Elimination of Disparities (Pacific CEED) RMI Guam CNMI American Samoa Palau Kosrae Chuuk Pohnpei Yap University of Hawaii Office of Public Health Sciences Pacific Islands Health Officers Association (PIHOA) Overarching advisory Micronesian Community Network & Micronesian Health Advisory Council (Hawaii) Micronesian Community Network & Micronesian Health Advisory Council (Hawaii) U.S. Affiliated Pacific Island (USAPI) jurisdictions

CCPI Role in NCD response Strong tie back to the large, multi-sectoral community coalitions in each jurisdiction – Many of the coalitions are being merged or have representation to jurisdiction NCD coalitions Established network and structure within the jurisdictions and region Leveraging resources to support NCD when it intersects with the cancer plans

CCPI Role in NCD response Regional cancer plan and programs have been built and are required by CDC to address the continuum of cancer control, including policy, data and evaluation as cross-cutting goals – Many opportunities to partner, strengthen, synergize efforts and leverage resources for NCD See grid

Collaborative Development of Regional CCC Plan May 2011 (in HNL) and Nov 9-12, 2011 in Guam: – PPTFI, PCDC, PBMA Presidents invited – Reps/input from CNMI and Guam breast & cervical cancer screening, CNMI MCH, Guam Tobacco and BRFSS, Palau and Guam cancer registries, Regional cancer registry Workgroups refine and prioritize objectives and strategies, develop 1-2 year workplan for at least 1 collaborative strategy Reaffirmed guiding principles of collaboration and regional CCC mobilization framework

CCPI Contribution to NCD response and requirements for success Refer to handout (grid) “ Request for Collaboration by the CCPI” – PIHOA NCD Roadmap area is listed at the bottom of each objective (column 1) – Possible ways to collaborate (column 2) – Potential partners (column 3) For a bigger picture, refer to “USAPI Regional CCC Plan ” summary

Requirements for Successful Implementation of Regional CCC Plan CCPI and UH to seek resources to continue the level and types of TA provided by Pacific CEED and seek additional resources for plan implementation Inclusion of reps from key NCD/PIHOA affiliate partners to the CCPI meetings – ?no official regional MCH structure – much needed – $$ resource needed to pay for travel of the Partners

Requirements for Successful Implementation of Regional CCC Plan Depending on the strategy (see grid): – Collaborative working groups to participate in design, implementation & evaluation of certain strategies – Engagement of multiple partners, including PIHOA HIS, QA/PIM, HRH – Input via conference calls, Good & frequent communication with PIHOA and Affiliates – Regional NCD framework

Examples of outcomes / impact of successful collaboration

Impacts of Regional CCC Mobilization funded jurisdiction CCC coalitions and programs Cancer registry in each jurisdiction and the region Uniformly reported cancer data from 2007 diagnosis year Building local evaluation capacity Curriculum: Program Planning & Evaluation, Project Evaluation FSM and RMI National Guidelines FSM Tobacco Summit and followup Expanded community engagement in prevention & screening Improved screening for cervical cancer Curriculum: Palliative Care, Breast & Cervical Cancer screening, FSM Curriculum to implement B&CC guidelines

Total CDC funding for REGIONAL PROGRAMS 5 years ( ): $8,089,029 $20M