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1 Developed by: U-MIC To start the presentation, click on this button in the lower right corner of your screen. The presentation will begin after the screen changes and you press enter.

GINA Genetic Information Nondiscrimination Act Developed by: U-MIC University of Michigan IRB Collaborative

Genetic Information Nondiscrimination Act 3 Developed by: U-MIC GINA health insurance providers  may not request or require genetic information of individuals family members  may not use genetic information to determine coverage rates preexisting conditions employers  may not use genetic information to determine hiring firing promoting terms of employment (2008)

Genetic Information Nondiscrimination Act 4 Developed by: U-MIC state laws prohibiting genetic discrimination may extend beyond GINA GINA federal law defines minimum protections

Genetic Information Nondiscrimination Act 5 Developed by: U-MIC genetic information a person’s genetic tests clinical research-related a family member’s genetic tests including fetuses and embryos a disease within a family genetic services testing counseling education does not include: sex age genetic test DNA RNA chromosomes proteins metabolites genotypes mutations chromosomal changes

Genetic Information Nondiscrimination Act 6 Developed by: U-MIC health insurance only does not apply to providers of: life insurance disability insurance long-term care insurance

Genetic Information Nondiscrimination Act 7 Developed by: U-MIC research exception insurers engaged in research may request genetic testing in connection with the study, provided: research activity complies with federal regulations the written request clearly states that testing is voluntary will not affect eligibility will not affect premium and contribution amounts results will not be used in underwriting (not require) and applicable laws

Genetic Information Nondiscrimination Act 8 Developed by: U-MIC IRB review informed consent templates provide GINA language

9 Developed by: U-MIC GINA Genetic Information Nondiscrimination Act

THANK YOU. Brian Seabolt IRBMED 10 Developed by: U-MIC