David Praill Chief Executive, Help the Hospices Hospice and Palliative Care An Introduction and Overview

Hospice Care Freedom from pain and to give peace, dignity and calm Tailored care for each individual to meet physical, emotional, social and spiritual needs Not just a building, care can be provided at home, in day centres and also on specialist hospital wards Specialist skills of staff and the need for access to ongoing support A Dying Patient is a Living Person

The UK Hospice Movement Pioneered in the voluntary sector with around 80% of hospice care now provided by local charities rooted in their communities Patients referred to hospice via primary health care sector – GP, hospital consultant, and maybe district nurse Nearly half of those admitted to a hospice return home – the average length of stay is just 13 days 250,000 patients given care free of charge total voluntary contribution is £522m – average 34% contribution from Government to running costs of adult services and 5% to children’s

In-patient UnitsUnitsBeds Independent charitable hospices*1732,397 Marie Curie hospices10236 Sue Ryder Care homes6111 Total voluntary sector services1892,744 NHS Managed Units64667 Total2533,411 *includes 33 units for children with 255 beds and 3 exclusively for patients with HIV/AIDS with 50 beds. One charity may have a number of units Hospice and Palliative Care Services UK – 2005 Services for adultsTotal Community Palliative Care services358 Hospice at home104 Day Hospices / Centres263 Hospital Support Nursing Services68 Hospital Support Teams293

In-patient UnitsOther Services NHS AdultVoluntary AdultTotal AdultChildren’s Home Care Day Care Hospital Based Hospice at Home UnitsBedsUnitsBedsUnitsBedsUnitsBeds , , , , , , , Hospice and Palliative care Provision

The UK Hospice Movement Around 90,000 volunteers By % of UK population will be over the age of 65 many more people will live and die from long-term chronic conditions rather than sudden acute disease Death is still taboo

Help the Hospices A world in which the best possible care is available to all people at the end of life what ever their circumstances

Help the Hospices The national charity for the hospice movement in the UK Support 200+ local hospices through: –Education and Training –Grant-Aid –Information –Advice – Advocating the cause of hospice care and the issues being faced to the government and general public –National Fundraising initiatives –Raise awareness and understanding of hospice care internationally

International Hospice Care 56million people die every year around the world – 40m in the developing world 60% of those dying in the developing world would benefit from hospice care to alleviate pain and suffering in their final days Yet only 1% in countries such as India are able to access such care Barriers to providing hospice and palliative care – non- availability of morphine and fear of drug prescription and lack of resources for professional education and to sustain any services developed

Help the Hospices support for international hospice care Twinning Education & Training Grants ($ since 2002) Policy information Funding Advocacy Skills Share World Hospice and Palliative Care Day October 8 th 2005

The first World Hospice and Palliative Care Day - October 8 th 2005 Open to any organisation or individual who cares about and is involved in hospice and palliative care anywhere in the world Voices for Hospices – events in 58 countries Help the Hospices’ launch of “Suffering at the end of life: the state of the world” Increase understanding of the nature and value of hospice care and destroy some of the myths