MESOTHELIOMA SPECIALTY CARE CENTER (SCC) HILLMAN CANCER CENTER

Provide patients with a seamless multidisciplinary approach to care Streamline the access to final diagnosis and treatment Provide pertinent patient education Provide on-going support to patients and their caregivers Include patients and their goals in treatment plans Update referring and other physicians quickly; keep involved in treatment plan MISSION STATEMENT 2

PATIENT AND FAMILY OUTCOMES: INCREASED Support Education/Understanding of Plan Compliance Satisfaction DECREASED Time of Entry Into System Number of Clinic Visits Time to Treatment MESOTHELIOMA SCC OUTCOMES: INCREASED Team Communication/Collaboration Accrual to Clinical Trials/NMVB Referring/Other Physician Relationships Community Perception of MD Expertise DECREASED Waiting for Patient Medical Records Time to Diagnosis Time to Develop Treatment Plan Time to Start Treatment Plan HILLMAN CANCER CENTER: MESOTHELIOMA SCC STRATEGIC PLAN 3 PATIENT CENTERED CARE GOALS: STREAMLINED ACCESS TO POINT OF ENTRY OF CARE SEAMLESS ACCESS TO MULTIDISCIPLINARY CARE TEAM PATIENT/FAMILY GOALS AND INPUT INTO PLAN OF CARE TREATMENT PLAN BEGINS WITHIN TWO WEEKS EXCEPTIONAL PATIENT EXPERIENCE MESOTHELIOMA SCC CARE TEAM GOALS: EXPEDITED ACCESS TO MULTIDISCIPLINARY CARE TEAM COLLEAGUES EXPEDITED ACCESS TO CLINICAL TRIALS/NMVB EXPEDITED MEDICAL RECORD REVIEW AND DIAGNOSIS EXPEDITED AND COLLABORATIVE PLAN OF CARE TREATMENT PLAN BEGINS WITHIN TWO WEEKS

PHYSICIANS Pulmonary MedicineSurgical Oncology David O. Wilson, MD, MPH David L. Bartlett, MD James F. Pingpank, MD, FACS Medical Oncology David Friedland, MDThoracic Surgical Oncology James Ohr, DO Neil A. Christie, MD Daniel Petro, MD Rodney Landreneau, MD John Rhee, MD James D. Luketich, MD Ahmad Tarhini, MD Matthew Schuchert, MD Radiation OncologyPain Management Dwight E. Heron, MD, FACRO Linda King, MD Gregory J. Kubicek, MD MESOTHELIOMA SPECIALTY CARE CENTER MULTIDISCIPLINARY TEAM 4

SUPPORT STAFF Nurse Coordinator Patty Williams, MPH, BSN, RN** Nutrition Behavioral Medicine Joyce Diacopolous, RD, CSO, LDN Ellen Ormond, PhD Shelley Eberle, RD, LDN Social Work Joyce Grater, PhD, LCSW Kay Lowmaster, MSW, LCSW **Position funded by the Simmons Foundation MESOTHELIOMA 5

MESOTHELIOMA NURSE COORDINATOR: Calls patient to perform needs assessment; reviews details of clinic visit Schedules all visits with multidisciplinary team for same day Contacts appropriate support services team members to see patient Checks insurance to address issues Accumulates all necessary medical records Sends new patient packet Navigates patient through the day of the visit Obtains consent, completed questionnaire for tissue bank (NMVB). Provides patient education materials, reviews with patient Ensures patient/family understand recommended treatment plan Contacts referring and other physicians day of visit to give brief update Contacts patient after visit to assess understanding of treatment plan, stress importance of next steps to take MESOTHELIOMA SPECIALTY CARE CENTER WHAT PATIENT SHOULD EXPECT 6

FROM PHYSICIANS: Review of medical records, scans at multidisciplinary tumor board prior to seeing patient Discuss recommended treatment plan with patients; respects patient goals Determine if any treatment can be performed closer to home at patient’s approval Ensure patient/family understand recommended treatment plan Contact, coordinate treatment plan with any other physicians involved Have staff arrange for any procedures, testing, follow up required Send detailed visit summary to referring and other physicians MESOTHELIOMA SPECIALTY CARE CENTER WHAT PATIENTS SHOULD EXPECT 7

OTHER MEMBERS OF MULTIDISCIPLINARY TEAM: Provide patient with identified needed services such as pain control Provide any further patient education materials Ensure patient’s understanding/approval of recommended treatment plan Provides contact information Coordinate treatment plan with other health care team members as needed Provide follow up to any treatment they have recommended MESOTHELIOMA SPECIALTY CARE CLINIC WHAT PATIENTS SHOULD EXPECT 8

Continue to obtain patient feedback in order to improve service Update patient education materials on a regular basis Identify need, begin local phasing to national support group Professional conference planned for September, 2012 Event planned for Mesothelioma Awareness Day, September 26, 2012 Increase local, regional, national awareness of the Hillman Cancer Center’s Mesothelioma Specialty Care Center Continue research efforts Continue to actively recruit patients for the NMVB MESOTHELIOMA SPECIALTY CARE CENTER FUTURE GOALS 9