Renal PatientView Progress and plans

Evaluation Patients – 95% very or quite valuable (65/30) – Main reason for not using – not knowing Staff – Equally positive – Raises the level of consultation – Better patient confidence, involvement

KPG forum comments RPV is amazing … I can instantly access my data and show it to my GP if I want to, it's really reassuring I am ever so jealous that my renal centre is not on RPV Excellent system... although there is obviously the argument that providing nearly all the information from blood test results can be improved upon by actually providing all the information … 9/10!

Fbk comments: transplant Thanks to the amazing NHS, RPV.... Bloods done this morning. All results posted on RPV by we are so lucky in the UK In my early weeks, I lived for my results on RPV. Its an excellent system.

Fbk: lost login

Map Registrations 17,000 Aug 2011 In 50 renal units +8 scheduled and several working on it …

Wide variation in uptake between units Up to 60% of RRT Over 40% in 9 units

Recruitment Many patients still don’t know about it Personal recommendation is powerful It may not matter so much who does that A practical demo/intro has lasting benefits

Recruitment toolkit for hints and suggestions and links to YouTube videos

What next? Data back to units Clinician enters Timeline of drugs, treatment (from RR?) Web entry Primary care prescribing list (SCR/ECR)

New data items in 2012 FBC – add differential wbc Lipids – LDL, HDL? HepB, C, HIV, MRSA PCR for CMV, BKV, HBV, HCV, EBV, HIV T, P, RR, O2 sat (Apache score items) ANCA, Complement, ANA/aDNA (Units of measurement; deceased patients remove) … new items for Radar

What next? Rare diseases ‘RPV for all’ Two-way communication

Background, adminrenal.org/rpv Recruitment rixg.org/rpv Technical rixg.org/developer Newsrenalpatientview.blogspot.com renalpatientview.org