JAMES MILEWSKI MENTOR: YUNAN CHEN, ASSISTANT PROFESSOR INFORMATICS Consumer health informatics and chronic illness: gathering requirements in context for.

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JAMES MILEWSKI MENTOR: YUNAN CHEN, ASSISTANT PROFESSOR INFORMATICS Consumer health informatics and chronic illness: gathering requirements in context for a personal health information management system

Personal Health Information Management PHIM Why we engage in PHIM PHIM Challenge  Mediums + Distributed Sources + Demands of Health Care System = Work Health Information at Home Spheres of Influence on PHIM

Consumer Health Informatics: Approaching PHIM in the Home Medical Informatics/Consumer Health Informatics  CHI: Reaching the patient through computers and telecommunication systems (Eysenback 2000)  Sociotechnical approach to explore interwoven networks of people, tools, routines, sources, and responsibilities of the patient

Previous Works The concept of work in the home (Corbin 1985) Privacy of Health: The consumer’s perspective. (Bartolo 2004) The Work of Health Information Management in the Household (Moen 2005) Information Work in the Chronic Experience (Souden 2008)

Why Diabetes? Chronic Illness : 78% of health care expenditure (Holman 2005) Previous work focused on diabetes  Personal understandings of illness among people who have type 2 diabetes (Hornsten et al 2004)  Harnessing the potential of the Internet to promote chronic illness self management: diabetes as an example of how well we are doing (Bull et al 2005)  Health communication and knowledge construction (Ginman et al 2003)

Purpose Understand the in-home PHIM process of type 2 diabetes patients and their support group Transitions Technologies Challenges of managing How info seeking and tech use change over time

Methodology Qualitative study based on in-depth interviews  Participant Recruitment  In-home session collecting data from questionnaire, photos, and interviews

Questionnaire Data Sources of Diabetes Information

12 Patients with a mean of 11.5 years as a diabetic Understanding of diabetes and its treatment

PATIENTS WERE ASKED TO RANK THE FOLLOWING AREAS WITH 1 BEING THE MOST DIFFICULT Most Difficult Part of Managing Your Diabetes

Technology: “We’re you busy yesterday?” Durable Media 37 Photos

Transcription Coding Using Grounded Theory: Independent coders sift, chart, and sort material according to key issues and themes until a consensus is reached for the codes. RelyEagerRedundant Info Don’t TrackMemoryTransit AttitudeChallengesRegimen Q: Do you take info between doctors? I: No. (3, 22) Transit I always feel unfortunate that they don’t have a database that the doctors could feed it in, the web or something. (3, 27) Eager I just leave, ah, it in my blood monitor. I have never charted it (3, 99) Rely

Preliminary Results and Implications Patients with type 2 diabetes and their support networks  Shift away from paper-based media to various technologies  Rely on IT-enabled diabetes management  Eager for new technologies to augment the home-based PHIM process PHIM system adoption factors  Perceived usefulness and the perceived ease of use across the span of the disease

What’s next? Cont’d gathering data: recruit 5 more participants Extracting software requirements and use case scenarios Prototype implementation and testing