Proposal for Adolescent Classification Exception for Pediatric Lung Candidates Thoracic Organ Transplantation Committee Spring 2014

 Some young pediatric lung candidates are large enough to accept lungs from donors 12 and older, but do not have priority  Adolescent classification exception gives pediatric lung candidates access to larger sized donors  Adolescent classification exception policy expires July 1, 2014 The Problem

 Reduce waiting list mortality rates for pediatric lung candidates  Gain a better understanding of the relationship between the LAS and pediatric candidates Goal of the Proposal

 Centers can continue to apply for adolescent classification exceptions for young pediatric lung candidates  Must report all LAS data for candidates less than 12 with approved adolescent classification exceptions How the Proposal will Achieve its Goal

 10 candidates with approved adolescent classification exception since June 2013  5 transplanted, 4 still waiting, 1 died  Age at time of exception request  7 were years old, 3 were 6-9 years old  Blood type  6 O, 2 A, 2 B  Diagnoses  6 CF, 2 primary arterial hypertension, 1 ARDS/pneumonia, 1 pulmonary veno-occlusive disease  LAS score exception request  4 requests for LAS score exception Supporting Evidence

 Centers can apply for adolescent classification exceptions for young pediatric candidates  Must maintain pediatric and adolescent records for candidates with approved adolescent classification exceptions*  Must report all LAS variables for candidates with an adolescent classification exception What Members Will Need to Do *No additional registration fee

 Steven Webber, M.D., MBChB, MRCP Committee Chair  Name Region # Representative  Liz Robbins Callahan Committee Liaison Questions?