Moving Outside the Boundaries of the Doctor's Office: Empowering Patients with Technology.

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Moving Outside the Boundaries of the Doctor's Office: Empowering Patients with Technology © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number

Patient and Family Engagement “a set of beliefs and behaviors by patients, family members, and health professionals and a set of organizational policies, procedures and interventions that ensure both the inclusion of patients and families as central members of the health care team and active partnerships with providers and provider organizations” - Benjamin K. Chu, M.D. Chair of the AHA’s Board of Trustees, Health Research & Educational Trust/American Hospital Association, 2013 © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number

Reality for Patients and Caregivers 6 Feb 2012 Coordinate Prepare Decide Evaluate Communicate Partner Coordinate Prepare Decide Evaluate Communicate Partner X Images provided by K. Sheridan © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number

Impact and Cost of Chronic Conditions One Chronic Condition Multiple Chronic Condition No Chronic Condition Caregivers Almost 1/3 people in the US manage at least one chronic condition More than 3/4 of US healthcare dollars are spent on their behalf Data extrapolated from 1.Wolff JL, Boult C, Boyd C, Anderson G. Newly reported chronic conditions and onset of functional dependency. J Am Geriatr Soc 2005;53:851– Bodenheimer, T., Chen E., Bennett, H. Health Affairs 28, no. 1 (2009): 64–74; /hlthaff AARP Public Policy Institute. Insight on the Issues, November 2008: Valuing the Invaluable: The Economic Value of Family Caregiving, 2008 Update © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number

Using Technology to Close the Gap Collect high-value data without adding burden Minimize the number of steps necessary Present data in concise, meaningful way Enable and incentivize patients to partner with providers EASY FAST EFFECTIVE PATIENT- CENTRIC 1. IMS Institute for Healthcare Informatics. “Patient Apps for Improved Healthcare: From Novelty to Mainstream.” Parsippany, NJ: October The MITRE Corporation healthAction Patient Toolkit research © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number

Missing Data: Symptom Severity Image source: The MITRE Corporation © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number

Missing Data: Compliance Image source: The MITRE Corporation © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number

Enabling Integration of Data © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number

Concise, Meaningful Visualization Image sources: The MITRE Corporation © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number

Meaningful Use and Patient- Generated Data ONC. “Patient-Generated Health Data: White Paper”. April Stage 1Stage 2Stage D ATA CAPTURE AND SHARING A DVANCE CLINICAL PROCESSES I MPROVED OUTCOMES “Consider Stage 3 Meaningful Use criteria to enable and support the use of PGHD by providers; Convene stakeholders to identify PGHD opportunities, barriers, and value; Support development and use of PGHD-related standards; and Conduct additional PGHD research to collect lessons learned, support adoption, and inform policy”. © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number

Making It Easy, Fast and Patient-Centric Image sources: The MITRE Corporation © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number

Enabling Patient-Provider Partnership Pre-appointment checklist Tailored provider report – Patient goals, notes, questions – Symptom status – Medication list, response and compliance Support during appointment Post appointment updates Image sources: The MITRE Corporation © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number

Shared Understanding …the inclusion of patients and families as central members of the health care team and active partnerships with providers and provider organizations. © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number

Patient Engagement And Patient- Generated Data National e-Health Collaborative. “Patient Engagement Framework.” © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number

Triple Aim ● Better Care Improve the overall quality, by making health care more patient-centered, reliable, accessible & safe. ● Healthy People, Healthy Communities Improve the health of all Americans by supporting proven interventions to address behavioral, social & environmental determinants of health in addition to delivering higher-quality care. ● Affordable Care Reduce the cost of quality health care for individuals, families, employers & government. © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number National Quality Strategy, 2013 Annual Progress Report Update, August 8, 2013

Empowering Patients Outside the Doctor’s Office Compassionate, Informed Care Team Well-informed, Engaged Patient Partnership Improved health outcomes at lower cost © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number